General Care and Management of Hemophilia
This eLearning module presents Section 1 of the WFH Guidelines for the Management of Hemophilia: General Care and Management of Hemophilia. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life an introduction to hemophilia and the WFH recommendations regarding principles of care, comprehensive care, fitness and physical activity, adjunctive managements, prophylaxis, […]
Complications of Hemophilia
This eLearning module presents Section 6 of the WFH Guidelines for the Management of Hemophilia: Complications of Hemophilia. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding the management of inhibitors, as well as musculoskeletal and infection-related complications. Instructions Click on the “View Resource” button above to […]
Treatment of Specific Hemorrhages
This eLearning module presents Section 5 of the WFH Guidelines for the Management of Hemophilia: Treatment of Specific Hemorrhages. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding the treatment of specific hemorrhages including into muscles, joints, soft tissues, and internal organs, as well as head trauma, […]
Hemostatic Agents
This eLearning module presents Section 4 of the WFH Guidelines for the Management of Hemophilia: Hemostatic Agents. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding FVIII and FIX clotting factor concentrates, fresh frozen plasma, cryoprecipitate, and other pharmacological options including DDAVP, tranexamic acid, and epsilon aminocaproic […]
Laboratory Diagnosis
This eLearning module presents Section 3 of the WFH Guidelines for the Management of Hemophilia: Laboratory Diagnosis. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding the principles of diagnosis, as well as the technical aspects, equipment, and reagents involved in coagulation laboratory testing for bleeding disorders. […]
Special Management Issues
This eLearning module presents Section 2 of the WFH Guidelines for the Management of Hemophilia: Special Management Issues. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding carriers, genetic testing and counselling, prenatal diagnosis, childbirth, vaccinations, psychosocial issues, sexuality, and ageing for people with hemophilia. Instructions Click […]
Desmopressin (DDAVP)
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Polish Desmopressin (DDAVP) may be the treatment of choice for patients with mild or moderate hemophilia A and type 1 von Willebrand disease (VWD). This Fact Sheet presents essential information about this synthetic medicine which costs much less than […]
International Medical Card
The World Federation of Hemophilia International Medical Card provides critical information to others in the case of an emergency.
Desmopressin (DDAVP) – Polish
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for […]
Young Voices
The strength of the WFH and of its national member organizations lies in the commitment of inspiring leaders who work every day towards advancing the common vision of Treatment for All. However, many patient organizations struggle to engage young adults within their communities and there is a need to inspire more active participation. Young Voices […]
Proceedings of the WFH’s Ninth WFH Global Forum on Research and Treatment Products for Bleeding Disorders
A summary of discussions held at the Ninth WFH Global Forum on Research and Treatment Products for Bleeding Disorders which brings together patient groups, healthcare providers, researchers, regulators, industry representatives, and not-for-profit fractionators.
Report on the Annual Global Survey 2014
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.