Feldman BM, Funk S, Hilliard P, Van Der Net J, Zourikian N, Berstrom B-M, Engelbert RHH, Abad A, Petrini P, Manco-Johnson M, and the International Prophylaxis Study Group.
In order to access the HJHS Toolkit materials registration is required on: https://ipsg.ca/hjhs-portal. For general information on the background and development of the HJHS, please visit the IPSG website at: www.ipsg.ca.
The HJHS measures joint health, in the domain of body structure and function (i.e. impairment), of the joints most commonly affected by bleeding in hemophilia: the knees, ankles, and elbows.
It is primarily designed for children with hemophilia aged 4-18 years with mild joint impairment (e.g. treated with prophylaxis). It can be used when there is a need for orthopedic intervention, or as an outcome measure of physiotherapy interventions.
International Prophylaxis Study Group, [email protected]
Date of this review:
February 07, 2011
World Federation of Hemophilia Physical Examination Score (also called the Gilbert Score) Authors/developersGilbert M, and the Orthopedic Advisory Committee of
Paediatric Haemophilia Activities List (PedHAL) v0.11 Authors/developersGroen W, Van der Net J, Helders P, Fischer K. Questionnaire – children’s version