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Hemophilia Joint Health Score (HJHS)

ADDITIONAL INFORMATION

Hemophilia Joint Health Score (HJHS) 2.1

Authors/developers

Feldman BM, Funk S, Hilliard P, Van Der Net J, Zourikian N, Berstrom B-M, Engelbert RHH, Abad A, Petrini P, Manco-Johnson M, and the International Prophylaxis Study Group.

In order to access the HJHS Toolkit materials registration is required on: https://ipsg.ca/hjhs-portal. ​For general information on the background and development of the HJHS, please visit the IPSG website at: www.ipsg.ca.

Description

The HJHS measures joint health, in the domain of body structure and function (i.e. impairment), of the joints most commonly affected by bleeding in hemophilia: the knees, ankles, and elbows.

It is primarily designed for children with hemophilia aged 4-18 years with mild joint impairment (e.g. treated with prophylaxis). It can be used when there is a need for orthopedic intervention, or as an outcome measure of physiotherapy interventions.

Contact person(s):
International Prophylaxis Study Group, [email protected]

Date of this review:
February 07, 2011

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