Haemophilia Activities List (HAL) 2005
Authors/developers
van Genderen FR, van Meeteren NL, van der Bom JG, Heijnen L, De KP, van den Berg HM, Westers P, Helders PJ et al.; Van Creveldkliniek, University Medical Centre Utrecht, the Netherlands.
Authors/developers
van Genderen FR, van Meeteren NL, van der Bom JG, Heijnen L, De KP, van den Berg HM, Westers P, Helders PJ et al.; Van Creveldkliniek, University Medical Centre Utrecht, the Netherlands.
The HAL measures the impact of hemophilia on self-perceived functional abilities in adults.
It contains 42 multiple choice questions in seven domains:
Contact person:
Kathelijn Fischer, at the secretariat of the Van Creveldkliniek, University Medical Centre Utrecht:
vck-secretariaat@umcutrecht.nl
Date of this review: February 18, 2011
Overall utility:
The HAL measures functional outcome from the patient’s perspective. The Functional Independence Score in Hemophilia (FISH) could be used as a complementary performance-based observational tool.
Limitations:
The HAL has not been tested for reliability and sensitivity to change. Therefore, clinicians should take care with interpretation of results when used on different occasions. Its potential to detect clinically important changes as a result of therapeutic interventions is not yet known.
The scoring manual, available with the questionnaire, is self-explanatory and shows calculations, normalizations, and adjustment for missing values.
Psychometric properties:
Languages studied:
The HAL was developed in Dutch. It is also available in English, German, Swedish, as well as Bengali, Hindi, Kannada, Tamil, and Telegu. However, cross-cultural validation has not yet been established.
Groups tested with this measure:
Adults with hemophilia: two study groups, n=50 (van Genderen et al, 2004) and n=127 (van Genderen et al, 2006). For the validity study of 2006, participants had severe hemophilia A or B and a median age of 42 years (range 18-70 years).