The WFH Guidelines for the Management of Hemophilia: AAV Gene Therapy
The WFH Guidelines for the Management of Hemophilia: AAV Gene Therapy provide the first comprehensive, evidence-based recommendations to support the safe, standardized, and effective implementation of AAV gene therapy in clinical practice. Developed by the WFH AAV Gene Therapy Panel, which is composed of gene therapy experts who were involved in clinical trials and healthcare […]
Fundraising
Raising funds requires careful research and detailed planning, as well as creativity and good business practices. The second edition of this publication is intended to help volunteers and staff of patient organizations support their work through fundraising.
In-Hemoaction card game
The 2026 version is available in: SpanishThe 2018 version booklet is available in: English, Arabic, French, Russian, Spanish, Simplified Chinese Using the universal language of pictures, children around the world can learn about hemophilia in a fun, easy to understand, and interactive way. The In-HemoAction cards teach children how to prevent bleeds and manage hemophilia. An […]
Guidelines for the Management of Hemophilia
The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Portuguese, Ukrainian The 2nd edition is available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission from the WFH, by NMOs: Azerbaijani, Polish, Traditional Chinese For additional resources, such […]
WFH Webinar: International Women’s Day | March 6, 2026
In celebration of International Women’s Day, the World Federation of Hemophilia (WFH) hosted a webinar focused on postpartum hemorrhage and other pregnancy-related bleeding. The online event took place on Friday, March 6, from 8:00 to 9:30 EST, and examined key issues in managing bleeding during and after pregnancy, a critical area of care for women […]
Diagnóstico de Hemofilia e Outros Distúrbios Hemorrágicos: Manual de Laboratório, terceira edição
A 3ª edição do Manual de Laboratório da WFH é o guia definitivo para o diagnóstico preciso da hemofilia e outras doenças hemorrágicas. O Manual contém atualizações sobre tópicos anteriores relacionados à coagulação e inclui novas seções sobre inibidores, vWD e doenças sanguíneas raras, além de análises genéticas moleculares. The 3rd edition is available in: […]
World Health Assembly Resolution: Global Action to Advance Health Equity for People with Hemophilia and Other Bleeding Disorders
People with bleeding disorders continue to face significant challenges in diagnosis, access to treatment and care around the world. To overcome these challenges, several WHO Member States—led by the government of Armenia, and co-sponsored by the governments of Bosnia & Herzegovina, Egypt, Georgia, Latvia, Malta, Morocco, Nepal, Paraguay, Spain, Sri Lanka and Togo—are leading efforts […]
Overcoming Challenges in Hemophilia Care
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psychosocial Committee: Kathaleen Schnur and Alice Oliver The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]
Psychosocial Support for Families at the Child’s Diagnosis Stage
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psychosocial Committee: Patricia Cabré and Silvina Graña The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]
Space to Talk, Room to Listen
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psycosocial Committee: Sarah Whitaker and Jane Portnoy The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]
Genetic Technologies for Hemophilia
This information sheet is designed to help understand the similarities, differences, and current state of knowledge for the existing genetic technologies for hemophilia. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends […]
WFH expert panel discusses WHO EML and EMLc update
The global bleeding disorders community reached a major milestone in 2025, as the World Health Organization updated both its Essential Medicines List (EML) and Essential Medicines List for Children (EMLc) to align with modern international guidelines for hemophilia and von Willebrand disease. Led by the World Federation of Hemophilia (WFH), this achievement reflects two years […]