WFH Shared Decision Making Workbook for Hemophilia Treatment
The WFH Shared Decision Making (SDM) Workbook is for people with hemophilia A or B and their healthcare team. It defines the best practice for shared decision-making in hemophilia treatment and care, and provides a guide for people with hemophilia, caregivers, and healthcare professionals to facilitate successful shared decision-making. The WFH SDM Tool is a […]
WBDR 2023 Data Report
The World Bleeding Disorders Registry (WBDR) 2023 Data Report provides aggregate data on more than 14,000 people with hemophilia & von Willebrand disease around the globe who are enrolled in the WBDR. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or […]
von Willebrand Disease and reproductive tract bleeding, pregnancy, and postpartum bleeding | March 8, 2024
In celebration of International Women’s Day, the WFH hosted an educational webinar. The event centered around reproductive tract bleeding, pregnancy, and postpartum bleeding in women with von Willebrand Disease (VWD). Attendees had the opportunity to learn from and pose questions to key experts in the field, as well as to gain insights into the experiences […]
WFH Shared Decision Making for Hemophilia Webinar Series
The World Federation of Hemophilia (WFH) Shared decision-making (SDM) tool helps clinicians and people with hemophilia work together to make treatment decisions based on clinical evidence that balances risks and expected outcomes with patient preferences and values. Listen to three free 90-minute webinars covering the different hemophilia treatments and the applications of this important tool […]
3rd WFH Global Summit on Women and Girls with Bleeding Disorders (WGBD)
The chosen theme for this edition of the global summit centered on Equity and Access to Care for women and girls with bleeding disorders. Healthcare providers, people living with bleeding disorders, family members, national member organization leaders, and other stakeholders came together to discuss several topics including, the importance of data and the use of […]
Nurses Committee Webinars: how to write an abstract, prepare a poster, and present using PowerPoint
Welcome to this exciting project, a collaborative effort between the Nurses Committees of the European Association for Haemophilia and Allied Disorders (EAHAD), the International Society on Thrombosis and Hemostasis (ISTH), and the World Federation of Hemophilia (WFH). We worked together to increase the active participation of the nurses in bleeding disorder care during congresses. This […]
Circumcision in Hemophilia
This paper provides an overview of the Turkish method for circumcision in people with hemophilia, as well as appendices of the Israeli and Moroccan perspective. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the […]
Report on the Annual Global Survey 2022
The Report on Annual Global Survey (AGS) includes demographic and treatment data, providing a global snapshot of people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders around the world. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For […]
WFH Webinar on von Willebrand Disease | September 21, 2023
Listen to this 90-minute webinar presented on September 21, 2023 to learn about von Willebrand disease (VWD) in low-resource settings. Dr Michelle Lavin (Ireland), Dr Claudia Khayat (Lebanon), Dr Jecko Thachil (United Kingdom), Dr Augusto Federici (Italy) and Emily Ayoub (Canada) present global inequities in VWD registrations, survey results on VWD in the east Mediterranean […]
Global Policy and Access Summit 2023
The presentations and discussions of the third edition of the WFH Global Policy and Access Summit (GPAS) center around increasing access to diagnosis, treatment and care for people living with bleeding disorders. These include speakers from local and international partner organizations, national government representatives, healthcare professionals, WFH NMO leaders, and bleeding disorders advocates. The WFH […]
WFH Shared Decision Making Tool for Hemophilia Treatment
The WFH Shared Decision Making (SDM) Tool is an interactive decision-support system designed to facilitate discussions regarding treatment options between people with hemophilia (PWH) A or B and/or caregivers and their healthcare team, leading to informed decision-making. The WFH SDM Tool provides a framework to guide PWH through the thought process regarding treatment goals and […]
Gene Therapy for Hemophilia B Fact Sheet
This fact sheet contains commonly asked questions and more information on gene therapy for hemophilia B. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For […]