Dental care for people with bleeding disorders during COVID-19— what has changed?
Listen to this 1-hour webinar presented on 3 June 2020, chaired by Glenn Pierce, MD, PhD (WFH VP Medical). Presenters Maria Elvira Pizzigatti Correa (Brazil), WFH Dental Committee member; Zikra Alkhayal (Saudi Arabia), WFH Dental Committee member; and Alison Dougall (Ireland), past Chair of the WFH Dental Committee offer recommendations on how to deal with […]
Stepping up and not stepping out: a nursing and psychosocial perspective to COVID-19
Listen to this 1-hour webinar presented on 4 May 2020, chaired by Glenn Pierce, MD, PhD (WFH VP Medical). Kate Khair (U.K.), WFH Nurses Committee chair and Marlène Beijlevelt (Netherlands), WFH Nurses Committee member, presented a nursing perspective on how to deal with the current pandemic. Ed Kuebler (U.S.A), WFH Psychosocial Committee chair and Richa […]
WFH Webinar: Bleeding Disorders and COVID-19
Listen as Glenn Pierce, MD, PhD (WFH VP Medical), Flora Peyvandi, MD, PhD, Magdy El Ekiaby, MD, Cedric Hermans, MD, PhD, and Radoslaw Kaczmarek, PhD, provide the global bleeding disorders community with up-to-date information on COVID-19. This 1-hour webinar, presented on April 9, 2020, also addressed participants’ questions and concerns. To download a pdf of […]
What is von Willebrand Disease – Bengali
The 2023 edition is available in: English, Spanish, French This edition is also available in: Arabic, Russian, Simplified Chinese, Japanese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Polish, Farsi, Setswana This patient handbook contains basic information about the inheritance, diagnosis, symptoms and […]
An international survey to inform priorities for new guidelines on von Willebrand disease
As part of their international collaboration to develop guidelines for the diagnosis and management of von Willebrand disease (VWD), the American Society of Hematology (ASH), the International Society on Thrombosis and Haemostasis (ISTH), the National Hemophilia Foundation (NHF) and the World Federation of Hemophilia (WFH), along with the guidelines methods team, conducted a stakeholder survey […]
Non-factor Replacement Hemophilia Therapies
Adapted from: Global NMO Training 2018 plenary presentation by Glenn Pierce Reviewed by: Glenn Pierce Edited by: Georghia Michael The learner is strongly advised to complete Module 1 Introduction to Bleeding Disorders and Module 2 Evolution of Treatment Products, in the WFH Treatment Products eLearning Program before embarking upon Module 4. This fourth module in […]
Gene Therapy for Hemophilia
Adapted from: Global NMO Training 2018 plenary presentation by Glenn Pierce Reviewed by: Glenn Pierce Edited by: Georghia Michael The learner is strongly advised to complete Module 1 Introduction to Bleeding Disorders and Module 2 Evolution of Treatment Products, in the WFH Treatment Products eLearning Program before embarking upon Module 3. This third module in […]
Report on the Annual Global Survey 2018
This report celebrates the 20th anniversary of the Annual Global Survey (AGS). It includes demographic and treatment data, providing a global snapshot of people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders around the world.
Evolution of Treatment Products
Adapted from: Global NMO Training 2016 plenary presentation by Glenn Pierce Reviewed by: Glenn Pierce Edited by: Georghia Michael This second module in the Treatment Products eLearning Program explains the evolution of products for the treatment of bleeding disorders, from products derived from blood to artificially produced clotting factor concentrates (CFCs) with extended half-lives (EHL). […]
Hemophilia, relationships and intimacy: answering your questions
In this short video, Luis Melgar, a young man with a bleeding disorder, discusses some common questions regarding relationships, intimacy, and sexuality with WFH psychosocial and musculoskeletal experts Frederica Cassis and Greig Blamey. Covering topics such as dating, kissing, disclosing a bleeding disorder, sexual health, and marriage and having children, their casual conversation may answer […]
ePosters of the XXXI International Congress of the World Federation of Hemophilia
This interactive carousel features over 500 posters presented at the WFH 2014 World Congress in Melbourne, which can be searched by title, author, poster number, or topic. Via the Options tab on the right of each poster, viewers may download, print, or email posters; email poster authors directly; or participate in an online discussion. Please […]
ePosters of the XXX International Congress of the World Federation of Hemophilia
This interactive carousel features over 400 posters presented at the WFH 2012 World Congress in Paris, which can be searched by title, author, poster number, or topic. Via the Options tab on the right of each poster, viewers may download, print, or email posters; email poster authors directly; or participate in an online discussion. Please […]