Clinical trials for hemophilia
This handbook contains basic information about clinical trials for hemophilia. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, […]
Nurses track | WFH World Congress 2022
In these sessions from the WFH 2022 World Congress, listen to Lori Laudenbach, Cathy Harrison, Sharon Varney, Sandra Dodgson, Jennifer Meldau, Marcela Ganzella, Anjalin D’Souza, Jemma Efford, BJ Ramsay, Sarah Johns, Jan Kuhn, Greta Mulders, Khalid Al Habaybia, Khaled Al Qawasmeh, April Jones, Kim Schafer, Luke Pembroke, Marlene Beijlevelt, Lauren Nyhan, Nathan Connell, Carien Manuels, […]
Psychosocial track | WFH World Congress 2022
Reducing anxiety and stress for people impacted by a bleeding disorder In this session from the WFH 2022 World Congress, Susan Cutter (United States), Patricia Cabré (Spain) and Sarah Whitaker (United Kingdom), will discuss the impact of anxiety and stress on parents and caregivers, couples, young adults, and people with inherited bleeding disorders, as well […]
Data & Demographics workshop | WFH World Congress 2022
In this workshop from the WFH 2022 World Congress, listen to Miguel Escobar, Alfonso Iorio, Donna Coffin, Ellia Tootoonchian, Emily Ayoub, Toong Youttananukorn, Mark Skinner, Mayss Naccache, Thi Mai Nguyen, Jeff Stonebraker, and Declan Noone address improving patient outcomes through data. The WFH does not engage in the practice of medicine and under no circumstances […]
Dental track | WFH World Congress 2022
In these sessions from the WFH 2022 World Congress, listen to Lochana Nanayakkara, Norjehan Yahaya, Irakli Chachua, Zikra Alkhayal, Laura Olan, Branislav Bajkin, Norjehan Yahaya, Alison Dougall, Tom Cavell, Laura Olan, Danielle Nance, Graeme Ting, Dan Hart, Aisyah Ahmad Fisal, Elvira Correa, Rebecca Schaffer, Zikra Alkhayak, Miryam Parreira, Patricio Gatti, and Luigi Nibali address current […]
Laboratory sciences track | WFH World Congress 2022
In these sessions from the WFH 2022 World Congress, listen to Pierre Toulon, Silmara Montalvao, Steve Kitchen, Sukesh Nair,Yesim Dargaud, Marie-Christine Alessi, Annette Bowyer, Veronica Flood, Emmanuel Favaloro and Connie Miller address current topics in laboratory sciences. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for […]
Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | October 13 2022
Listen to this 2-hour webinar presented on October 13, 2022, to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. Susan Cutter (U.S.A.), Cesar Haddad (Lebanon), Marlène Beijevelt (The Netherlands), Miguel Escobar (U.S.A.), Sukesh Nair (India) and Annette von Drygalski (U.S.A.) presented practical information on bleeding disorders, including […]
Medical sessions | WFH World Congress 2022
In these sessions from the WFH 2022 World Congress, David Lillicrap, Len Valentino, Sophie Susen, Mrinal Gounder, Rebecca Kruse-Jarres, Christine Mrakotsky, Roger Schutgens, Dan Hart, Margaret Rand, Karina Meijer Waander van Heerde, Keith Gomez, Emna Gouider, Charles Nakar, Brian R. Long, Tiago Lopes, Claire Pouplard, Radek Kaczmarek, Johnny Mahlangu, Steve Pipe, K. Rajender Reddy, Pratima […]
Musculoskeletal track | WFH World Congress 2022
In these sessions from the WFH 2022 World Congress, listen to Adolfo Llinas, Cindy Bailey, Janaina Bosso, David Stephensen, Peter Aguero, Mark Krimmel, Mauricio Silva, Luigi Solimeno, Gianluigi Pasta, Alok Srivastava, Piet de Kleijn, Nicholas Goddard, David Stephensen, Pamela Narayan, Greig Blamey, Horacio Caviglia, Carla Daffunchio, Antonio Gavrilovski, Ryan Mahaffey, Rohini Dange, Cesar Haddad and […]
Questions to Ask Your Doctor Before Deciding to Take Gene Therapy
For people considering taking gene therapy, it is extremely important to learn as much as possible about if you are a good candidate, what the potential benefits and risks are, and what to expect during the procedure, and essential that your questions are answered. It may be helpful to write down a list of questions […]
Women and girls with bleeding disorders | WFH World Congress 2022
In these sessions from the WFH 2022 World Congress, listen to Roseline d’Oiron, Angela Weyand, Robert Sidonio, Michelle Sholzberg, Baiba Ziemele, Dawn Rotellini, Paula James, Rezan Abdul-Kadir, Claire McLintock, Nathalie Roussel, Lena Volland, Silvina Grana, Nikole Scappe, Megan Adediran, Colleen Vallad-Hix, Silvana Moran, Miguel Escobar, Marlene Beijlevelt, Rajiv K. Pruthi and Dan Hart address current […]
WFH Guidelines for NMO Capacity Development
The WFH Guidelines for NMO Capacity Development were created to provide clear benchmarks and a framework for regular assessments to support NMOs in developing their capacities based on best practices in key organizational development areas. The guidelines offer a systematic and participatory approach to organizational capacity development based on a framework for capacity development. It […]