What are Rare Clotting Factor Deficiencies?
Also Available In: Japanese This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Traditional Chinese This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of rare coagulation factor deficiencies.
What is von Willebrand Disease? – Sinhala
This edition is available in: English, Spanish, French The previous edition is also available in: Arabic, Russian, Simplified Chinese, Japanese This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of von Willebrand disease (VWD). This is not an official WFH translation. This resource has been translated with permission by a WFH […]
Guidelines for the Management of Hemophilia – Georgian
The 3rd edition is available in: English, French, Spanish, Arabic, Russian The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Portuguese, Ukrainian The 2nd edition is available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission from the […]
WBDR 2022 Data Report
The World Bleeding Disorders Registry (WBDR) 2022 Data Report provides aggregate data on more than 11,000 people with hemophilia around the globe who are enrolled in the WBDR. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific […]
What are Inherited Platelet Function Disorders?
This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of inherited platelet function disorders, including Bernard-Soulier syndrome, Glanzmann Thrombasthenia, and platelet granule disorders.
Psychosocial Care for People with Hemophilia
Psychosocial support is an important part of comprehensive care for people with hemophilia. The aim of this monograph is to guide parents and healthcare providers in the interventions and support that can be provided at all stages of development, from birth to adulthood.
Global Policy and Access Summit 2022
The presentations and discussions of the second edition of the WFH Global Policy and Access Summit (GPAS) center around improving care and access to treatment. They include speakers and participants from local and international partner organizations, national government representatives, healthcare professionals, WFH NMO leaders, and bleeding disorders advocates. The WFH does not engage in the […]
What is von Willebrand Disease?
The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi, Polish, Bengali, Setswana This patient handbook contains basic information about the inheritance, diagnosis, symptoms, and management of von Willebrand disease (VWD).
What is Hemophilia?
The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following language, with permission from the WFH, by NMOs: Amharic, Setswana This patient handbook contains basic information about the inheritance, symptoms, and management of hemophilia.
Women and Girls with Bleeding Disorders and Reproductive Health: Disparities in treatment and care | March 8, 2023
This 60-minute webinar explores the theme of “Women and Girls with Bleeding Disorders and Reproductive Health: Disparities in Treatment and Care” and covers topics like fertility challenges faced by WGBD, overlooked issues that have significant health impact for WGBDs and management of WGBDs in a multidisciplinary setting. Speakers included Dawn Rotellini (U.S.A), Maureen Baldwin, MD […]
Women and girls with hemophilia
The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Setswana, Traditional Chinese Hemophilia is a rare bleeding disorder. For many years, people believed that only men and boys could have symptoms of hemophilia. We now know […]
WFH Gene Therapy Registry – User guide for people with hemophilia – Italian
This document is an introductory guide for people with hemophilia who wish to join the World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR). It answers basic questions about the registry, its purpose, and what participants can expect. Please reach out to WFH with questions regarding participation in the registry at [email protected]. This guide is […]