Year: 2023
Language: English
Author(s): World Federation of Hemophilia
The WFH Shared Decision Making (SDM) Tool is an interactive decision-support system designed to facilitate discussions regarding treatment options between people with hemophilia (PWH) A or B and/or caregivers and their healthcare team, leading to informed decision-making.
The WFH SDM Tool provides a framework to guide PWH through the thought process regarding treatment goals and preferences, provides evidence-based and balanced education on expected outcomes by treatment class, and helps PWH navigate the complexities of the current treatment options.
The WFH SDM Tool is a “living” tool, meaning its data and information will be updated with new evidence twice per calendar year.
Videos
Fact Sheets
The WFH SDM Tool is supported by an educational grant from BioMarin Pharmaceutical Inc., CSL Behring, Novo Nordisk, Pfizer, and Spark Therapeutics.
The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.
The WFH does not promote any particular pharmaceutical product and any mention of any commercial brand in this presentation is strictly for educational purposes.
The WFH Shared Decision Making (SDM) Workbook is for people with hemophilia A or B and their healthcare team. It
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