Compendio de herramientas de valoración
La hemofilia es una enfermedad poco común y su tratamiento presenta múltiples facetas. Con avances en la atención médica como la administración de factor de reemplazo de manera profiláctica, se hace cada vez más evidente la necesidad de herramientas de valoración de resultados que sean válidas, confiables, sensibles a los cambios y predecibles. Con herramientas […]
Puntaje de la FMH para examen físico (puntaje Gilbert)
World Federation of Hemophilia Physical Examination Score (also called the Gilbert Score) Authors/developersGilbert M, and the Orthopedic Advisory Committee of WFH. Questionnaire N.B. These scores are posted with the permission of the developers.
MCMDM-1 EVW
Molecular and Clinical Markers for the Diagnosis and Management of Type 1 (MCMDM-1) VWD Bleeding Questionnaire Authors/developers:Tosetto A, Rodeghiero F, Castaman G, Goodeve A, Federici AB, Batlle J, Meyer D, Fressinaud E, Mazurier C, Goudemand J, Eikenboom J, Schneppenheim R, Budde U, Ingerslev J, Vorlova Z, Habart D, Holmberg L, Lethagen S, Pasi J, Hill […]
Puntaje Šrámek para hemorragias
Šrámek Bleeding Score Authors/developersŠrámek A, Eikenboom JCJ, Briet E, Vandenbroucke JP, Rosendaal FR Questionnaire and scoring key N.B.: These scores are posted with the permission of the developers.
Herramienta de valoración de hemorragias de la ISTH
International Society on Thrombosis and Haemostasis/Scientific and Standardization Committee Bleeding Assessment Tool (ISTH BAT) Authors/developersRodeghiero F, Tosetto A, Abshire T, Arnold DM, Coller B, James P, Neunert C, Lillicrap D on behalf of the ISTH/SSC Joint VWF and Perinatal/Pediatric Haemostasis Subcommittees Working Group Questionnaire and scoring sheet N.B.: These scores are posted with the permission […]
Cuestionario para hemorragias pediátricas (PBQ)
Pediatric Bleeding Questionnaire (PBQ) Authors/developersBowman M, Riddel J, Rand ML, Tosetto A, Silva M, James PD Questionnaire and scoring key N.B.: These scores are posted with the permission of the developers.
MCMDM-1 EVW condensado
Condensed Molecular and Clinical Markers for the Diagnosis and Management of Type 1 (MCMDM-1) VWD Bleeding Questionnaire Authors/developersBowman M, Mundell G, Grabell J, Hopman WH, Rapson D, Lillicrap D, James PD Questionnaire and scoring key N.B.: These scores are posted with the permission of the developers.
Puntaje de salud articular para pacientes con hemofilia (HJHS)
Hemophilia Joint Health Score (HJHS) 2.1 Authors/developersFeldman BM, Funk S, Hilliard P, Van Der Net J, Zourikian N, Berstrom B-M, Engelbert RHH, Abad A, Petrini P, Manco-Johnson M, and the International Prophylaxis Study Group. The HJHS is available from the International Prophylaxis Study Group website: www.ipsg.ca. Registration will be required to access the educational material. […]
Sistema de puntaje para epistaxis
Epistaxis Scoring System (ESS) Authors/developersKatsanis E, Luke K-H, Hsu E, Li M, Lillicrap D Scoring system N.B.: These scores are posted with the permission of the developers.
Puntaje de independencia funcional para pacientes con hemofilia (FISH)
Functional Independence Score in Hemophilia (FISH) – 2007 Authors/developers:Poonnoose PM, Padankatti S, Macaden AS, Srivastava A; Christian Medical College, Vellore, India. Instructions and questionnaireScoring sheet N.B. These scores are posted with the permission of the developers.
Cuadro pictórico para la evaluación de pérdida de sangre
Pictorial Blood Loss Assessment Chart (PBAC) Authors/developersHigham JM, O’Brien PMS, Shaw RW Chart N.B.: These scores are posted with the permission of the developers.
Lista de actividades para pacientes con hemofilia – Pediátrica (PedHAL)
Paediatric Haemophilia Activities List (PedHAL) v0.11 Authors/developersGroen W, Van der Net J, Helders P, Fischer K. Questionnaire – children’s version 0.11Questionnaire – parents’ version 0.11 N.B. These scores are posted with the permission of the developers. More recent versions of these scores have been developed. The scores provided here (v0.11) are the versions for which […]