Compendium d’outils d’évaluation

L’hémophilie est une maladie rare et sa prise en charge requiert l’intervention de plusieurs disciplines. Les progrès en médecine, y compris le remplacement prophylactique de facteur, font ressortir de plus en plus le besoin d’avoir des outils d’évaluation qui sont valables, fiables, sensibles au changement, et prédictifs. La condition physique (santé des articulations), les capacités […]

PedHAL ou version pédiatrique de la liste d’activités chez les hémophiles

Paediatric Haemophilia Activities List (PedHAL) v0.11 Authors/developersGroen W, Van der Net J, Helders P, Fischer K. Questionnaire – children’s version 0.11Questionnaire – parents’ version 0.11 N.B. These scores are posted with the permission of the developers. More recent versions of these scores have been developed. The scores provided here (v0.11) are the versions for which […]

HJHS ou score relatif à la santé des articulations chez les hémophiles

Hemophilia Joint Health Score (HJHS) 2.1 Authors/developersFeldman BM, Funk S, Hilliard P, Van Der Net J, Zourikian N, Berstrom B-M, Engelbert RHH, Abad A, Petrini P, Manco-Johnson M, and the International Prophylaxis Study Group. The HJHS is available from the International Prophylaxis Study Group website: www.ipsg.ca. Registration will be required to access the educational material. […]

Questionnaire sur les saignements chez les enfants

Pediatric Bleeding Questionnaire (PBQ) Authors/developersBowman M, Riddel J, Rand ML, Tosetto A, Silva M, James PD Questionnaire and scoring key N.B.: These scores are posted with the permission of the developers.

Système d’évaluation de l’épistaxis

Epistaxis Scoring System (ESS) Authors/developersKatsanis E, Luke K-H, Hsu E, Li M, Lillicrap D Scoring system N.B.: These scores are posted with the permission of the developers.

MCMDM-1 mvW

Molecular and Clinical Markers for the Diagnosis and Management of Type 1 (MCMDM-1) VWD Bleeding Questionnaire Authors/developers:Tosetto A, Rodeghiero F, Castaman G, Goodeve A, Federici AB, Batlle J, Meyer D, Fressinaud E, Mazurier C, Goudemand J, Eikenboom J, Schneppenheim R, Budde U, Ingerslev J, Vorlova Z, Habart D, Holmberg L, Lethagen S, Pasi J, Hill […]

Outil d’évaluation spécifique à la ménorragie

Menorrhagia-Specific Screening Tool Authors/developersPhilipp CS, Faiz A, Dowling NF, Beckman M, Owens S, Ayers C, Bachmann G QuestionnaireScoring key N.B.: These scores are posted with the permission of the developers.

Score relatif aux saignements de Šrámek

Šrámek Bleeding Score Authors/developersŠrámek A, Eikenboom JCJ, Briet E, Vandenbroucke JP, Rosendaal FR Questionnaire and scoring key N.B.: These scores are posted with the permission of the developers.

HAL ou liste d’activités chez les hémophiles

Haemophilia Activities List (HAL) 2005 Authors/developersvan Genderen FR, van Meeteren NL, van der Bom JG, Heijnen L, De KP, van den Berg HM, Westers P, Helders PJ et al.; Van Creveldkliniek, University Medical Centre Utrecht, the Netherlands. Questionnaire N.B. These scores are posted with the permission of the developers. A more recent version of this […]