Compendium d’outils d’évaluation
L’hémophilie est une maladie rare et sa prise en charge requiert l’intervention de plusieurs disciplines. Les progrès en médecine, y compris le remplacement prophylactique de facteur, font ressortir de plus en plus le besoin d’avoir des outils d’évaluation qui sont valables, fiables, sensibles au changement, et prédictifs. La condition physique (santé des articulations), les capacités […]
PedHAL ou version pédiatrique de la liste d’activités chez les hémophiles
Paediatric Haemophilia Activities List (PedHAL) v0.11 Authors/developersGroen W, Van der Net J, Helders P, Fischer K. Questionnaire – children’s version 0.11Questionnaire – parents’ version 0.11 N.B. These scores are posted with the permission of the developers. More recent versions of these scores have been developed. The scores provided here (v0.11) are the versions for which […]
FISH ou score relatif à l’autonomie fonctionnelle chez les hémophiles
Functional Independence Score in Hemophilia (FISH) – 2007 Authors/developers:Poonnoose PM, Padankatti S, Macaden AS, Srivastava A; Christian Medical College, Vellore, India. Instructions and questionnaireScoring sheet N.B. These scores are posted with the permission of the developers.
HJHS ou score relatif à la santé des articulations chez les hémophiles
Hemophilia Joint Health Score (HJHS) 2.1 Authors/developersFeldman BM, Funk S, Hilliard P, Van Der Net J, Zourikian N, Berstrom B-M, Engelbert RHH, Abad A, Petrini P, Manco-Johnson M, and the International Prophylaxis Study Group. The HJHS is available from the International Prophylaxis Study Group website: www.ipsg.ca. Registration will be required to access the educational material. […]
Questionnaire sur les saignements chez les enfants
Pediatric Bleeding Questionnaire (PBQ) Authors/developersBowman M, Riddel J, Rand ML, Tosetto A, Silva M, James PD Questionnaire and scoring key N.B.: These scores are posted with the permission of the developers.
Système d’évaluation de l’épistaxis
Epistaxis Scoring System (ESS) Authors/developersKatsanis E, Luke K-H, Hsu E, Li M, Lillicrap D Scoring system N.B.: These scores are posted with the permission of the developers.
MCMDM-1 mW
Molecular and Clinical Markers for the Diagnosis and Management of Type 1 (MCMDM-1) VWD Bleeding Questionnaire Authors/developers:Tosetto A, Rodeghiero F, Castaman G, Goodeve A, Federici AB, Batlle J, Meyer D, Fressinaud E, Mazurier C, Goudemand J, Eikenboom J, Schneppenheim R, Budde U, Ingerslev J, Vorlova Z, Habart D, Holmberg L, Lethagen S, Pasi J, Hill […]
Outil d’évaluation spécifique à la ménorragie
Menorrhagia-Specific Screening Tool Authors/developersPhilipp CS, Faiz A, Dowling NF, Beckman M, Owens S, Ayers C, Bachmann G QuestionnaireScoring key N.B.: These scores are posted with the permission of the developers.
Score relatif aux saignements de Šrámek
Šrámek Bleeding Score Authors/developersŠrámek A, Eikenboom JCJ, Briet E, Vandenbroucke JP, Rosendaal FR Questionnaire and scoring key N.B.: These scores are posted with the permission of the developers.
Grille d’évaluation illustrée des pertes sanguines
Pictorial Blood Loss Assessment Chart (PBAC) Authors/developersHigham JM, O’Brien PMS, Shaw RW Chart N.B.: These scores are posted with the permission of the developers.
HAL ou liste d’activités chez les hémophiles
Haemophilia Activities List (HAL) 2005 Authors/developersvan Genderen FR, van Meeteren NL, van der Bom JG, Heijnen L, De KP, van den Berg HM, Westers P, Helders PJ et al.; Van Creveldkliniek, University Medical Centre Utrecht, the Netherlands. Questionnaire N.B. These scores are posted with the permission of the developers. A more recent version of this […]
Score relatif à l’examen physique de la FMH (score de Gilbert)
World Federation of Hemophilia Physical Examination Score (also called the Gilbert Score) Authors/developersGilbert M, and the Orthopedic Advisory Committee of WFH. Questionnaire N.B. These scores are posted with the permission of the developers.