يحتوي هذا الكتيب على معلومات أساسية حول التجارب السريرية للهيموفيليا. لا ينخرط الاتحاد العالمي للهيموفيليا (WFH) في الممارسة الطبية، ولا يوصي تحت أية ظروف بمعالجة معيّنة لأي أشخاص معينين. لا يقدم الاتحاد العالمي للهيموفيليا (WFH) أي تمثيل، ضمني أو صريح، بأن جرعات الأدوية أو بقية توصيات المعالجة الواردة في هذه المطبوعة صحيحة. ولهذه الأسباب، نوصي […]
VWD Diagnosis Guidelines Executive Summary VWD Management Guidelines Executive Summary These clinical practice guidelines for the diagnosis and management of von Willebrand disease (VWD) were developed in collaboration with the American Society for Hematology (ASH), the International Society on Thrombosis and Haemostasis (ISTH), and National Hemophilia Foundation (NHF) and published in the journal Blood Advances. […]
Snapshot: ASH ISTH NHF WFH Guideline Recommendations for the Management of von Willebrand Disease (VWD) – Arabic
This one-page summary presents the highlights of the ASH ISTH NHF WFH Guidelines on the Management of von Willebrand Disease (VWD). It outlines what is covered in the guidelines, why they matter and who they affect. Click here to access the full ASH ISTH NHF WFH VWD Guidelines.
Snapshot: ASH ISTH NHF WFH Guideline Recommendations for the Diagnosis of von Willebrand Disease (VWD) – Arabic
This one-page summary presents the highlights of the ASH ISTH NHF WFH Guidelines on the Diagnosis of von Willebrand Disease (VWD). It outlines what is covered in the guidelines, why they matter and who they affect. Click here to access the full ASH ISTH NHF WFH VWD Guidelines.
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Amharic, Czech, Farsi, Japanese, Latvian, Lithuanian, Mongolian, Polish, Portuguese, Serbian, Traditional Chinese This illustrated guide includes a detailed description of exercises designed to counteract the long-term effects of joint and muscle bleeding and the tendency to develop abnormal […]
von Willebrand disease (VWD) is the most common type of bleeding disorder, affecting up to 1% of the world’s population. Since symptoms are often mild, a significant majority of patients remain undiagnosed. The diagnosis of VWD is complex and should be made by physicians experienced in the treatment of bleeding disorders. However, the primary care […]
This illustrated schematic demonstrates the normal process of blood clotting, how it is diminished when a clotting factor is lacking, and how infusion of replacement therapy works to achieve normal levels of blood clotting. It also illustrates the clotting factor cascade and highlights the points in the cascade where each type of hemophilia treatment product […]
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Polish Desmopressin (DDAVP) may be the treatment of choice for patients with mild or moderate hemophilia A and type 1 von Willebrand disease (VWD). This Fact Sheet presents essential information about this synthetic medicine which costs much less than […]
Volunteer team members, and their beneficiaries, often have differing opinions on what projects should be of highest priority for an organization. It is essential to reach agreement on your priorities in a relatively quick and efficient manner and to coordinate the team’s energies, in order to be the most effective. This guide provides strategies for […]
A self-assessment is a useful exercise for organizations to take a closer look at what they do and how they do it. The process can help identify strengths and weaknesses and guide strategic planning. In 2011, the WFH developed this self-assessment specifically for its national member organizations (NMOs). It features a scoring system to evaluate […]
Quality data are extremely useful in advocating for better care for people with bleeding disorders. This Fact Sheet introduces the rationale for data collection, the criteria for quality data, the keys for successful quality data collection, and examples of how quality data collection can provide the foundation of effective advocacy.
تمت ترجمة الإصدار السابق من هذا المصدر أيضًا، بإذن من الاتحاد العالمي للهيموفيليا ، إلى اللغة بواسطة NMOs الفارسية , سيتسوانا يحتوي كتيب المريض هذا على معلومات أساسية حول الوقاية ، التسريب المنتظم لمركزات عامل التخثر من أجل منع النزيف. الوقاية هي الهدف من العلاج للأشخاص المصابين بالهيموفيليا الشديدة ، مما يسمح لهم بالبقاء نشطين […]