التجارب السريرية للهيموفيليا

يحتوي هذا الكتيب على معلومات أساسية حول التجارب السريرية للهيموفيليا. لا ينخرط الاتحاد العالمي للهيموفيليا (WFH) في الممارسة الطبية، ولا يوصي تحت أية ظروف بمعالجة معيّنة لأي أشخاص معينين. لا يقدم الاتحاد العالمي للهيموفيليا (WFH) أي تمثيل، ضمني أو صريح، بأن جرعات الأدوية أو بقية توصيات المعالجة الواردة في هذه المطبوعة صحيحة. ولهذه الأسباب، نوصي […]

ASH ISTH NHF WFH Guidelines on the Diagnosis and Management of VWD – Arabic

VWD Diagnosis Guidelines Executive Summary VWD Management Guidelines Executive Summary These clinical practice guidelines for the diagnosis and management of von Willebrand disease (VWD) were developed in collaboration with the American Society for Hematology (ASH), the International Society on Thrombosis and Haemostasis (ISTH), and National Hemophilia Foundation (NHF) and published in the journal Blood Advances. […]

Exercises for People with Hemophilia – Arabic

This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Amharic, Czech, Farsi, Japanese, Latvian, Lithuanian, Mongolian, Polish, Portuguese, Serbian, Traditional Chinese This illustrated guide includes a detailed description of exercises designed to counteract the long-term effects of joint and muscle bleeding and the tendency to develop abnormal […]

von Willebrand Disease: An Introduction for the Primary Care Physician – Arabic

von Willebrand disease (VWD) is the most common type of bleeding disorder, affecting up to 1% of the world’s population. Since symptoms are often mild, a significant majority of patients remain undiagnosed. The diagnosis of VWD is complex and should be made by physicians experienced in the treatment of bleeding disorders. However, the primary care […]

Factor Replacement Therapy Schematic – Arabic

This illustrated schematic demonstrates the normal process of blood clotting, how it is diminished when a clotting factor is lacking, and how infusion of replacement therapy works to achieve normal levels of blood clotting. It also illustrates the clotting factor cascade and highlights the points in the cascade where each type of hemophilia treatment product […]

Desmopressin (DDAVP) – Arabic

This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Polish Desmopressin (DDAVP) may be the treatment of choice for patients with mild or moderate hemophilia A and type 1 von Willebrand disease (VWD). This Fact Sheet presents essential information about this synthetic medicine which costs much less than […]

Planning and Initiating Projects: A Guide for Emergent NMOs – Arabic

Volunteer team members, and their beneficiaries, often have differing opinions on what projects should be of highest priority for an organization. It is essential to reach agreement on your priorities in a relatively quick and efficient manner and to coordinate the team’s energies, in order to be the most effective. This guide provides strategies for […]

Hemophilia Patient Organization Self-Assessment – Arabic

A self-assessment is a useful exercise for organizations to take a closer look at what they do and how they do it. The process can help identify strengths and weaknesses and guide strategic planning. In 2011, the WFH developed this self-assessment specifically for its national member organizations (NMOs). It features a scoring system to evaluate […]

Quality Data Collection – Arabic

Quality data are extremely useful in advocating for better care for people with bleeding disorders. This Fact Sheet introduces the rationale for data collection, the criteria for quality data, the keys for successful quality data collection, and examples of how quality data collection can provide the foundation of effective advocacy.

ما هو العلاج الوقائي؟

تمت ترجمة الإصدار السابق من هذا المصدر أيضًا، بإذن من الاتحاد العالمي للهيموفيليا ، إلى اللغة بواسطة NMOs الفارسية , سيتسوانا يحتوي كتيب المريض هذا على معلومات أساسية حول الوقاية ، التسريب المنتظم لمركزات عامل التخثر من أجل منع النزيف. الوقاية هي الهدف من العلاج للأشخاص المصابين بالهيموفيليا الشديدة ، مما يسمح لهم بالبقاء نشطين […]