WFH Shared Decision Making Workbook for Hemophilia Treatment
The WFH Shared Decision Making (SDM) Workbook is for people with hemophilia A or B and their healthcare team. It defines the best practice for shared decision-making in hemophilia treatment and care, and provides a guide for people with hemophilia, caregivers, and healthcare professionals to facilitate successful shared decision-making. The WFH SDM Tool is a […]
WBDR 2023 Data Report
The World Bleeding Disorders Registry (WBDR) 2023 Data Report provides aggregate data on more than 14,000 people with hemophilia & von Willebrand disease around the globe who are enrolled in the WBDR. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or […]
Circumcision in Hemophilia
This paper provides an overview of the Turkish method for circumcision in people with hemophilia, as well as appendices of the Israeli and Moroccan perspective. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the […]
Report on the Annual Global Survey 2022
The Report on Annual Global Survey (AGS) includes demographic and treatment data, providing a global snapshot of people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders around the world. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For […]
Gene Therapy for Hemophilia B Fact Sheet
This fact sheet contains commonly asked questions and more information on gene therapy for hemophilia B. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For […]
Gene Therapy for Hemophilia A Fact Sheet
This fact sheet contains commonly asked questions and more information on gene therapy for hemophilia A. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For […]
Hemostatic Rebalancing Therapy Fact Sheet
This fact sheet contains commonly asked questions and more information on hemostatic rebalancing therapy. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or […]
Bispecific Antibody Therapy Fact Sheet
This fact sheet contains commonly asked questions and more information on bispecific antibody therapy. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or […]
Clotting Factor Replacement Therapies Fact Sheet
This fact sheet contains commonly asked questions and more information on standard half-life (SHL) and extended half-life (EHL) clotting factor replacement therapies. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends […]
What are Rare Clotting Factor Deficiencies?
Also Available In: Japanese This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Traditional Chinese This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of rare coagulation factor deficiencies.
What is von Willebrand Disease? – Sinhala
This edition is available in: English, Spanish, French The previous edition is also available in: Arabic, Russian, Simplified Chinese, Japanese This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of von Willebrand disease (VWD). This is not an official WFH translation. This resource has been translated with permission by a WFH […]
Guidelines for the Management of Hemophilia – Georgian
The 3rd edition is available in: English, French, Spanish, Arabic, Russian The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Portuguese, Ukrainian The 2nd edition is available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission from the […]