Starting School: When Is the Right Time?
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psychosocial Committee: Silvina Graña and Patricia Cabré. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific […]
Schooling in Children with Bleeding Disorders
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psychosocial Committee: Silvina Graña and Patricia Cabré. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific […]
Physical activity and emotional wellbeing
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by Silvina Graña from the WFH Psychosocial Committee and Carla Daffunchio from the WFH Musculoskeletal Committee. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis […]
Summary of the 14th WFH Global Forum on Advances and Access to Safe Treatment Products for Bleeding Disorders
A summary of discussions held at the Fourteenth WFH Global Forum on Advances and Access to Safe Treatment Products for Bleeding Disorders which brings together patient groups, healthcare providers, researchers, and industry representatives. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis […]
Hemophilia in Pictures – Kinyarwanda
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese This is not an official WFH translation. This resource has been translated with permission by a Hemophilia Treatment Centre (HTC), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for […]
The WFH Guidelines for the Management of Hemophilia: AAV Gene Therapy
The WFH Guidelines for the Management of Hemophilia: AAV Gene Therapy provide the first comprehensive, evidence-based recommendations to support the safe, standardized, and effective implementation of AAV gene therapy in clinical practice. Developed by the WFH AAV Gene Therapy Panel, which is composed of gene therapy experts who were involved in clinical trials and healthcare […]
Fundraising
Raising funds requires careful research and detailed planning, as well as creativity and good business practices. The second edition of this publication is intended to help volunteers and staff of patient organizations support their work through fundraising.
Guidelines for the Management of Hemophilia
The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Portuguese, Ukrainian The 2nd edition is available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission from the WFH, by NMOs: Azerbaijani, Polish, Traditional Chinese For additional resources, such […]
Diagnóstico de Hemofilia e Outros Distúrbios Hemorrágicos: Manual de Laboratório, terceira edição
A 3ª edição do Manual de Laboratório da WFH é o guia definitivo para o diagnóstico preciso da hemofilia e outras doenças hemorrágicas. O Manual contém atualizações sobre tópicos anteriores relacionados à coagulação e inclui novas seções sobre inibidores, vWD e doenças sanguíneas raras, além de análises genéticas moleculares. The 3rd edition is available in: […]
Overcoming Challenges in Hemophilia Care
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psychosocial Committee: Kathaleen Schnur and Alice Oliver The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]
Psychosocial Support for Families at the Child’s Diagnosis Stage
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psychosocial Committee: Patricia Cabré and Silvina Graña The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]
Space to Talk, Room to Listen
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psycosocial Committee: Sarah Whitaker and Jane Portnoy The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]