The WFH Guidelines for the Management of Hemophilia: AAV Gene Therapy
The WFH Guidelines for the Management of Hemophilia: AAV Gene Therapy provide the first comprehensive, evidence-based recommendations to support the safe, standardized, and effective implementation of AAV gene therapy in clinical practice. Developed by the WFH AAV Gene Therapy Panel, which is composed of gene therapy experts who were involved in clinical trials and healthcare […]
Fundraising
Raising funds requires careful research and detailed planning, as well as creativity and good business practices. The second edition of this publication is intended to help volunteers and staff of patient organizations support their work through fundraising.
Guidelines for the Management of Hemophilia
The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Portuguese, Ukrainian The 2nd edition is available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission from the WFH, by NMOs: Azerbaijani, Polish, Traditional Chinese For additional resources, such […]
Diagnóstico de Hemofilia e Outros Distúrbios Hemorrágicos: Manual de Laboratório, terceira edição
A 3ª edição do Manual de Laboratório da WFH é o guia definitivo para o diagnóstico preciso da hemofilia e outras doenças hemorrágicas. O Manual contém atualizações sobre tópicos anteriores relacionados à coagulação e inclui novas seções sobre inibidores, vWD e doenças sanguíneas raras, além de análises genéticas moleculares. The 3rd edition is available in: […]
Overcoming Challenges in Hemophilia Care
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psychosocial Committee: Kathaleen Schnur and Alice Oliver The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]
Psychosocial Support for Families at the Child’s Diagnosis Stage
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psychosocial Committee: Patricia Cabré and Silvina Graña The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]
Space to Talk, Room to Listen
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psycosocial Committee: Sarah Whitaker and Jane Portnoy The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]
Genetic Technologies for Hemophilia
This information sheet is designed to help understand the similarities, differences, and current state of knowledge for the existing genetic technologies for hemophilia. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends […]
Report on the Annual Global Survey 2024
The Report on Annual Global Survey (AGS) includes demographic and treatment data, providing a global snapshot of people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders around the world. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For […]
Summary of the 13th WFH Global Forum On Research and Treatment Products For Bleeding Disorders
A summary of discussions held at the Thirteenth WFH Global Forum on Research and Treatment Products for Bleeding Disorders which brings together patient groups, healthcare providers, researchers, regulators, and industry representatives. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation […]
Summary of the 12th WFH Global Forum On Research and Treatment Products For Bleeding Disorders
A summary of discussions held at the Twelfth WFH Global Forum on Research and Treatment Products for Bleeding Disorders which brings together patient groups, healthcare providers, researchers, regulators, and industry representatives. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation […]
Diagnosis of Hemophilia and Other Bleeding Disorders: A Laboratory Manual
The 3rd edition of the WFH laboratory Manual is the definitive how-to guide for the accurate diagnosis of hemophilia and other bleeding disorders. The Manual contains updates on previous topics on coagulation, and includes new sections on inhibitors, vWD and rare blood disorders, and molecular genetic analysis. The 3rd edition is available in: French, Spanish […]