What is Hemophilia? – Japanese
The 2023 edition is available in: English, Spanish, French, Arabic, Russian, Simplified Chinese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Amharic, Setswana この患者向けハンドブックには、血友病の遺伝特性、症状、管理についての基本情報が記載されています。
Economic Benefits of Comprehensive Hemophilia Care – Japanese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 包括的血友病医療を受けている患者は、血友病治療センター以外の医療機関で治療を受けた患者よりも死亡率が低く、出血の合併症による入院率が低くなっています。
Economic Benefits of Basic Hemophilia Treatment & Care – Japanese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese このファクトシートには、血友病患者に基本的な治療およびケアを提供するメリットが記載されています。適切なケアには、血友病治療センターおよび治療用製剤の利用、医療関係者、患者、家族に対する教育が含まれます。
Benefits of Treating Hemophilia with Factor Concentrate – Japanese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 安全で規制を順守している血漿由来凝固因子濃縮製剤で血友病患者を治療することは、出血性疾患患者への社会経済的影響、さらには政府やコミュニティ、家族から求められる長期的支援を直接軽減します。
Chronic Hemophilic Synovitis: The Role of Radiosynovectomy – Japanese
Also Available In: English, Spanish This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or for […]
Proceedings of the WFH’s Third Global Forum on the Safety and Supply of Hemophilia Treatment Products
A summary of discussions held at the World Federation of Hemophilia’s Global Forum on the Safety and Supply of Hemophilia Treatment Products, which brings together patient groups, healthcare providers, regulators, industry representatives, and not-for-profit fractionators.
The WFH Haemophilia Centre Twinning programme: ten years of growth, 1993-2003
By linking emerging and established treatment centres, the World Federation of Hemophilia’s Twinning Program has improved treatment and care for people with bleeding disorders around the world.
Recruiting and Retaining Volunteers
Describes the steps hemophilia organizations can take to attract volunteers, keep them motivated, and evaluate their volunteer program. Includes three forms that may be useful at the recruitment stage to ensure clarity of expectations between the volunteer and the organization.
Looking After the Veins
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi A description of the correct procedures for venipuncture to avoid vein damage.
Looking After the Veins – Farsi
Also Available In: English, Spanish This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or for […]
Abstracts of the XXV International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains abstracts presented at the XXV WFH Congress, Seville, Spain, 19-24 May 2002.
State of the Art XXV International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains reviews and original research reports from selected scientific sessions presented at the XXV WFH Congress, Seville, Spain, 19-24 May 2002.