An Introduction to Key Concepts in Health Economics for Hemophilia Organizations
This publication aims to help patient organizations develop an understanding of health economics and advocate on issues relating to the economics of hemophilia care.
Action Planning
An effective action plan helps organizations, and charitable organizations in particular, achieve results: monitor progress, maintain control, give people responsibility, strengthen accountability, and build greater teamwork through a sense of involvement.
A Study of Reported Factor VIII Use Around the World
Presents data on the reported use of factor VIII (FVIII) per country. FVIII use varies considerably, even among the wealthiest countries, and increases with economic capacity.
A Study of Variations in the Reported Hemophilia A Prevalence Around the World
An analysis of the global prevalence of hemophilia A, based in large part on the WFH’s Global Survey Data. Prevalence data are extremely valuable information for the planning efforts of national healthcare agencies in setting priorities and allocating resources for the treatment of hemophilia B.
The Challenge of an Ageing Hemophilic Population
As their life expectancy approaches that of the general population, people with hemophilia are now facing many of the same health problems. This paper gives healthcare providers an excellent overview of the relationship between hemophilia and age-related diseases such as cardiovascular disease, renal disease, and cancer.
Joint Replacement Surgery in Hemophilia
A comprehensive, multidisciplinary overview of the key issues in joint replacement surgery, from pre-operative assessment to long-term management.
Hemophilia in Pictures – Vietnamese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for […]
Jogo de cartas In-Hemoação
Através da linguagem universal das imagens, as crianças do mundo inteiro podem aprender o que é a hemofilia de uma maneira divertida, fácil de entender e interativa. As cartas In-Hemoação ensinam as crianças a prevenir sangrados e a gerir a hemofilia. Versão atualizada do popularíssimo jogo Hemoação, esta edição inclui novos conteúdos sobre profilaxia, inibidores, […]
HemoAction Card Game – Arabic
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Polish Using the universal language of pictures, children around the world can learn about hemophilia in a fun, easy to understand, and interactive way. The HemoAction cards teach children how to prevent bleeds and manage hemophilia. Each HemoAction […]
Report on the Annual Global Survey 2008
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.
Proceedings of the WFH’s Sixth Global Forum on the Safety and Supply of Treatment Products for Bleeding Disorders
A summary of discussions held at the World Federation of Hemophilia’s Global Forum on the Safety and Supply of Hemophilia Treatment Products, which brings together patient groups, healthcare providers, regulators, industry representatives, and not-for-profit fractionators.
Media Relations
Hemophilia organizations may not have the resources to hire a communications professional or fund an ambitious communications and media strategy. However, all can benefit from forming a relationship with the local and perhaps even national media.