Hemophilia Societies: Challenges and Development
Outlines the common challenges faced by hemophilia societies at various stages of development and offers practical solutions to help these organizations meet the needs of people with bleeding disorders.
A Study of Reported Factor IX Use Around the World
Presents data on the reported use of factor IX (FIX) per country. FIX use varies considerably, even among the wealthiest countries, and increases with economic capacity. Trends also suggest that consumption of FIX has been increasing at a greater rate in high-income countries.
A Study of Variations in the Reported Hemophilia B Prevalence Around the World
An analysis of the global prevalence of hemophilia B, based in large part on the WFH’s Global Survey Data. Prevalence data are extremely valuable information for the planning efforts of national healthcare agencies in setting priorities and allocating resources for the treatment of hemophilia B.
Assessment and Management of Pain in Hemophilia Patients
This monograph highlights the prevalence and devastating impact of pain in hemophilia patients, reviews currently available treatment options, and identifies the unmet needs for appropriate pain management.
HCV-Related Liver Cancer in People with Hemophilia
A review of the epidemiology, risk factors, treatment, and outcomes of liver cancer associated with chronic hepatitis C infection, with a focus on aspects that are of specific interest in people with hemophilia.
Structure and Functions of Comprehensive Hemophilia Treatment Centres – Japanese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 包括的血友病治療センター（HTC）は、ケアの極めて重要な要素です。このファクトシートでは、HTCがどのように設立され、それによって出血性疾患患者の全体的な健康および満足度がどのように向上するかを概説します。
Abstracts of the XXIX International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains abstracts presented at the XXIX WFH Congress, Buenos Aires, Argentina, 10-14 July 2010.
State of the Art XXIX International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains reviews and original research reports from selected scientific sessions presented at the XXIX WFH Congress, Buenos Aires, Argentina, 10-14 July 2010.
Report on the Annual Global Survey 2009
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.
An Introduction to Key Concepts in Health Economics for Hemophilia Organizations
This publication aims to help patient organizations develop an understanding of health economics and advocate on issues relating to the economics of hemophilia care.
Action Planning
An effective action plan helps organizations, and charitable organizations in particular, achieve results: monitor progress, maintain control, give people responsibility, strengthen accountability, and build greater teamwork through a sense of involvement.
A Study of Reported Factor VIII Use Around the World
Presents data on the reported use of factor VIII (FVIII) per country. FVIII use varies considerably, even among the wealthiest countries, and increases with economic capacity.