MCMDM-1 VWD
Molecular and Clinical Markers for the Diagnosis and Management of Type 1 (MCMDM-1) VWD Bleeding Questionnaire Authors/developers:Tosetto A, Rodeghiero F, Castaman G, Goodeve A, Federici AB, Batlle J, Meyer D, Fressinaud E, Mazurier C, Goudemand J, Eikenboom J, Schneppenheim R, Budde U, Ingerslev J, Vorlova Z, Habart D, Holmberg L, Lethagen S, Pasi J, Hill […]
Condensed MCMDM-1 VWD
Condensed Molecular and Clinical Markers for the Diagnosis and Management of Type 1 (MCMDM-1) VWD Bleeding Questionnaire Authors/developersBowman M, Mundell G, Grabell J, Hopman WH, Rapson D, Lillicrap D, James PD Questionnaire and scoring key N.B.: These scores are posted with the permission of the developers.
Functional Independence Score in Hemophilia (FISH)
Functional Independence Score in Hemophilia (FISH) – 2007 Authors/developers:Poonnoose PM, Padankatti S, Macaden AS, Srivastava A; Christian Medical College, Vellore, India. Instructions and questionnaireScoring sheet N.B. These scores are posted with the permission of the developers.
Hemophilia Joint Health Score (HJHS)
Hemophilia Joint Health Score (HJHS) 2.1 Authors/developersFeldman BM, Funk S, Hilliard P, Van Der Net J, Zourikian N, Berstrom B-M, Engelbert RHH, Abad A, Petrini P, Manco-Johnson M, and the International Prophylaxis Study Group. In order to access the HJHS Toolkit materials registration is required on: https://ipsg.ca/hjhs-portal. For general information on the background and development […]
Haemophilia Activities List – Pediatric (PedHAL)
Paediatric Haemophilia Activities List (PedHAL) v0.11 Authors/developersGroen W, Van der Net J, Helders P, Fischer K. Questionnaire – children’s version 0.11Questionnaire – parents’ version 0.11 N.B. These scores are posted with the permission of the developers. More recent versions of these scores have been developed. The scores provided here (v0.11) are the versions for which […]
Haemophilia Activities List (HAL)
Haemophilia Activities List (HAL) 2005 Authors/developersvan Genderen FR, van Meeteren NL, van der Bom JG, Heijnen L, De KP, van den Berg HM, Westers P, Helders PJ et al.; Van Creveldkliniek, University Medical Centre Utrecht, the Netherlands. Questionnaire N.B. These scores are posted with the permission of the developers. A more recent version of this […]
WFH Physical Examination Score (aka Gilbert score)
World Federation of Hemophilia Physical Examination Score (also called the Gilbert Score) Authors/developersGilbert M, and the Orthopedic Advisory Committee of WFH. Questionnaire N.B. These scores are posted with the permission of the developers.
General Care and Management of Hemophilia
This eLearning module presents Section 1 of the WFH Guidelines for the Management of Hemophilia: General Care and Management of Hemophilia. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life an introduction to hemophilia and the WFH recommendations regarding principles of care, comprehensive care, fitness and physical activity, adjunctive managements, prophylaxis, […]
Complications of Hemophilia
This eLearning module presents Section 6 of the WFH Guidelines for the Management of Hemophilia: Complications of Hemophilia. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding the management of inhibitors, as well as musculoskeletal and infection-related complications. Instructions Click on the “View Resource” button above to […]
Treatment of Specific Hemorrhages
This eLearning module presents Section 5 of the WFH Guidelines for the Management of Hemophilia: Treatment of Specific Hemorrhages. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding the treatment of specific hemorrhages including into muscles, joints, soft tissues, and internal organs, as well as head trauma, […]
Hemostatic Agents
This eLearning module presents Section 4 of the WFH Guidelines for the Management of Hemophilia: Hemostatic Agents. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding FVIII and FIX clotting factor concentrates, fresh frozen plasma, cryoprecipitate, and other pharmacological options including DDAVP, tranexamic acid, and epsilon aminocaproic […]
Laboratory Diagnosis
This eLearning module presents Section 3 of the WFH Guidelines for the Management of Hemophilia: Laboratory Diagnosis. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding the principles of diagnosis, as well as the technical aspects, equipment, and reagents involved in coagulation laboratory testing for bleeding disorders. […]