Report on the Annual Global Survey 2015
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
ePosters of the XXXII International Congress of the World Federation of Hemophilia
This interactive carousel features over 500 posters presented at the WFH 2016 World Congress, which can be searched by title, author, poster number, or topic. Via the Options tab on the right, viewers may download, print, or email posters; email poster authors directly; or participate in an online discussion. Presentation slides can also be viewed […]
Abstracts of the XXXII International Congress of the World Federation of Hemophilia
The freely available special Haemophilia Journal supplement dedicated to the WFH 2016 World Congress Orlando (July 2016, Vol 22, Issue Supplement S4 Pages 1–152) features abstracts of many of the posters presented at the Congress, including Late-Breaking Abstracts and those selected for presentation as Free Papers.
State of the Art of the XXXII International Congress of the World Federation of Hemophilia
The freely available special Haemophilia Journal supplement dedicated to the WFH 2016 World Congress Orlando (Vol 22, Issue Supplement S5 Pages 1–95) features reviews of the state of the art of each of the topics of the medical plenaries, medical sessions, and laboratory science sessions at the Congress, written by featured speakers.
Planning and Initiating Projects: A Guide for Emergent NMOs
Volunteer team members, and their beneficiaries, often have differing opinions on what projects should be of highest priority for an organization. It is essential to reach agreement on your priorities in a relatively quick and efficient manner and to coordinate the team’s energies, in order to be the most effective. This guide provides strategies for […]
Hemophilia Patient Organization Self-Assessment
A self-assessment is a useful exercise for organizations to take a closer look at what they do and how they do it. The process can help identify strengths and weaknesses and guide strategic planning. In 2011, the WFH developed this self-assessment specifically for its national member organizations (NMOs). It features a scoring system to evaluate […]
Abstracts of the XXXI International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains abstracts presented at the XXXI WFH Congress, Melbourne, Australia, 11-15 May 2014.
Desmopressin (DDAVP)
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Polish Desmopressin (DDAVP) may be the treatment of choice for patients with mild or moderate hemophilia A and type 1 von Willebrand disease (VWD). This Fact Sheet presents essential information about this synthetic medicine which costs much less than […]
International Medical Card
The World Federation of Hemophilia International Medical Card provides critical information to others in the case of an emergency.
Desmopressin (DDAVP) – Polish
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for […]
Young Voices
The strength of the WFH and of its national member organizations lies in the commitment of inspiring leaders who work every day towards advancing the common vision of Treatment for All. However, many patient organizations struggle to engage young adults within their communities and there is a need to inspire more active participation. Young Voices […]
Proceedings of the WFH’s Ninth WFH Global Forum on Research and Treatment Products for Bleeding Disorders
A summary of discussions held at the Ninth WFH Global Forum on Research and Treatment Products for Bleeding Disorders which brings together patient groups, healthcare providers, researchers, regulators, industry representatives, and not-for-profit fractionators.