eLearning Platform

Resources » Quality Data Collection
LINKS
DETAILS

Year:

Language:

Author(s): World Federation of Hemophilia,eL_vwd

Format: Document

Quality Data Collection

ADDITIONAL INFORMATION

Quality data are extremely useful in advocating for better care for people with bleeding disorders. This Fact Sheet introduces the rationale for data collection, the criteria for quality data, the keys for successful quality data collection, and examples of how quality data collection can provide the foundation of effective advocacy.

RELATED RESOURCES

Documents and PDFs

WBDR 2020 Data Report

The World Bleeding Disorders Registry (WBDR) 2020 Data Report provides aggregate data on more than 7,000 people with hemophilia around

Read More >