Abstracts of the XXV International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains abstracts presented at the XXV WFH Congress, Seville, Spain, 19-24 May 2002.
State of the Art XXV International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains reviews and original research reports from selected scientific sessions presented at the XXV WFH Congress, Seville, Spain, 19-24 May 2002.
Delivery of Treatment for Haemophilia: Report of a Joint WHO/WFH/ISTH Meeting
Helps identify effective treatment strategies for hemophilia. Topics include delivery of treatment, on-demand treatment, prophylaxis, immune tolerance, and factor assays.
Improving Care Beyond our Borders: A Twinning Guide for Hemophilia Treatment Centres
The Hemophilia Treatment Centre (HTC) Twinning program pairs emerging HTCs with established ones to help increase the levels of diagnosis and medical attention for people with hemophilia.
Proceedings of the WFH’s Second Global Forum on the Safety and Supply of Hemophilia Treatment Products
A summary of discussions held at the World Federation of Hemophilia’s Global Forum on the Safety and Supply of Hemophilia Treatment Products, which brings together patient groups, healthcare providers, regulators, industry representatives, and not-for-profit fractionators.
Reaching Beyond Our Borders: A Twinning Guide for Hemophilia Organizations
The Hemophilia Organization Twinning program links emerging and established hemophilia patient groups to share knowledge in areas such as patient education, outreach, fundraising, and all other aspects of operating a successful hemophilia patient society.
Conduct in Clinical Trials
Clinical trials must be designed to fulfill high scientific and ethical standards. This monograph reviews the basic principles of good clinical trial practice.
The International Haemophilia Training Centres of the World Federation of Hemophilia: A 30-Year Review
A retrospective of the World Federation of Hemophilia’s IHTC program: its aims and objectives, achievements and lessons learned, and directions for the future.
Key Issues in Hemophilia Treatment Part 2: Organizing a National Programme for Comprehensive Hemophilia Care
Addresses the considerations for establishing a national programme for comprehensive hemophilia care.
Key Issues in Hemophilia Treatment Part 1: Products
An overview of the issues surrounding the collection, manufacture, pricing, and marketing of factor replacement products.
Control of Haemophilia: Haemophilia Care in Developing Countries Report of a joint WHO/WFH Meeting
This joint WFH/WHO report outlines the possibilities and priorities for hemophilia care delivery in the developing world
Musculoskeletal Complications of Hemophilia: The Joint
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Japanese, Russian This monograph describes the effects of acute and recurrent bleeding on joint health and offers strategies to preserve joint function.