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Women and Girls with Bleeding Disorders and Reproductive Health: Disparities in treatment and care | March 8, 2023

This 60-minute webinar explores the theme of “Women and Girls with Bleeding Disorders and Reproductive Health: Disparities in Treatment and Care” and covers topics like fertility challenges faced by WGBD, overlooked issues that have significant health impact for WGBDs and management of WGBDs in a multidisciplinary setting. Speakers included Dawn Rotellini (U.S.A), Maureen Baldwin, MD […]

Women and girls with hemophilia

The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Setswana, Traditional Chinese Hemophilia is a rare bleeding disorder. For many years, people believed that only men and boys could have symptoms of hemophilia. We now know […]

WFH Gene Therapy Registry – User guide for hemophilia treatment centres – Italian

The World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR) welcomes the participation of all Hemophilia Treatment Centres (HTCs) involved in gene therapy. This includes HTCs that administer gene therapy and those that manage or follow-up with patients who have received gene therapy at other centres. This user guide will orient HTCs to the WFH […]

WFH Gene Therapy Registry – User guide for hemophilia treatment centres – German

The World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR) welcomes the participation of all Hemophilia Treatment Centres (HTCs) involved in gene therapy. This includes HTCs that administer gene therapy and those that manage or follow-up with patients who have received gene therapy at other centres. This user guide will orient HTCs to the WFH […]

Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | December 15 2022

Listen to this 2-hour webinar presented on December 15, 2022, to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. Patricia Cabré (Spain), Adolfo Llinas (Colombia), Luigi Solimeno (Italy), Radoslaw Kaczmarek (U.S.A.), Catherine Hayward (Canada), and Andra James (U.S.A.) presented practical information on bleeding disorders, including resilience and […]

Report on the Annual Global Survey 2021

The Report on Annual Global Survey (AGS) includes demographic and treatment data, providing a global snapshot of people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders around the world.

WFH highlight sessions and general plenaries | WFH World Congress 2022

In these sessions from the WFH 2022 World Congress, listen to Cesar Garrido, Glenn Pierce, Mark Kay, Alain Baumann, Dawn Rotellini, Cesar Garrido, Megan Adediran, Dejan Petrovic, Robed Amin, Declan Noone, Durhane Wong-Rieger, Yuyun Maryuningsih, Margarita Elizabeth Garcia Gonzalez, Assad Haffar, Kibet Shikuku, Barun Khakurel, Donna Coffin, Margareth Ozelo, Novie Amelia Chozie and Tahira Zafar […]