Global Policy and Access Summit 2022
The presentations and discussions of the second edition of the WFH Global Policy and Access Summit (GPAS) center around improving care and access to treatment. They include speakers and participants from local and international partner organizations, national government representatives, healthcare professionals, WFH NMO leaders, and bleeding disorders advocates. The WFH does not engage in the […]
What is von Willebrand Disease?
The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi, Polish, Bengali, Setswana This patient handbook contains basic information about the inheritance, diagnosis, symptoms, and management of von Willebrand disease (VWD).
What is Hemophilia?
The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following language, with permission from the WFH, by NMOs: Amharic, Setswana This patient handbook contains basic information about the inheritance, symptoms, and management of hemophilia.
Women and Girls with Bleeding Disorders and Reproductive Health: Disparities in treatment and care | March 8, 2023
This 60-minute webinar explores the theme of “Women and Girls with Bleeding Disorders and Reproductive Health: Disparities in Treatment and Care” and covers topics like fertility challenges faced by WGBD, overlooked issues that have significant health impact for WGBDs and management of WGBDs in a multidisciplinary setting. Speakers included Dawn Rotellini (U.S.A), Maureen Baldwin, MD […]
Women and girls with hemophilia
The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Setswana, Traditional Chinese Hemophilia is a rare bleeding disorder. For many years, people believed that only men and boys could have symptoms of hemophilia. We now know […]
WFH Gene Therapy Registry – User guide for people with hemophilia – Italian
This document is an introductory guide for people with hemophilia who wish to join the World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR). It answers basic questions about the registry, its purpose, and what participants can expect. Please reach out to WFH with questions regarding participation in the registry at [email protected]. This guide is […]
WFH Gene Therapy Registry – User guide for people with hemophilia – German
This document is an introductory guide for people with hemophilia who wish to join the World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR). It answers basic questions about the registry, its purpose, and what participants can expect. Please reach out to WFH with questions regarding participation in the registry at [email protected]. This guide is […]
WFH Gene Therapy Registry – User guide for hemophilia treatment centres – Italian
The World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR) welcomes the participation of all Hemophilia Treatment Centres (HTCs) involved in gene therapy. This includes HTCs that administer gene therapy and those that manage or follow-up with patients who have received gene therapy at other centres. This user guide will orient HTCs to the WFH […]
WFH Gene Therapy Registry – User guide for hemophilia treatment centres – German
The World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR) welcomes the participation of all Hemophilia Treatment Centres (HTCs) involved in gene therapy. This includes HTCs that administer gene therapy and those that manage or follow-up with patients who have received gene therapy at other centres. This user guide will orient HTCs to the WFH […]
WFH Gene Therapy Registry – Basics of hemophilia, gene therapy, and long-term data collection – German
This document is an introductory guide to the World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR). It answers basic questions about the registry, its purpose, and what participants can expect. The guide is designed to help those who receive gene therapy for hemophilia and their care teams to decide if they should participate in […]
WFH Gene Therapy Registry – Basics of hemophilia, gene therapy, and long-term data collection – Italian
This document is an introductory guide to the World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR). It answers basic questions about the registry, its purpose, and what participants can expect. The guide is designed to help those who receive gene therapy for hemophilia and their care teams to decide if they should participate in […]
Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | December 15 2022
Listen to this 2-hour webinar presented on December 15, 2022, to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. Patricia Cabré (Spain), Adolfo Llinas (Colombia), Luigi Solimeno (Italy), Radoslaw Kaczmarek (U.S.A.), Catherine Hayward (Canada), and Andra James (U.S.A.) presented practical information on bleeding disorders, including resilience and […]