Proceedings of the WFH’s Second Global Forum on the Safety and Supply of Hemophilia Treatment Products
A summary of discussions held at the World Federation of Hemophilia’s Global Forum on the Safety and Supply of Hemophilia Treatment Products, which brings together patient groups, healthcare providers, regulators, industry representatives, and not-for-profit fractionators.
Reaching Beyond Our Borders: A Twinning Guide for Hemophilia Organizations
The Hemophilia Organization Twinning program links emerging and established hemophilia patient groups to share knowledge in areas such as patient education, outreach, fundraising, and all other aspects of operating a successful hemophilia patient society.
Conduct in Clinical Trials
Clinical trials must be designed to fulfill high scientific and ethical standards. This monograph reviews the basic principles of good clinical trial practice.
The International Haemophilia Training Centres of the World Federation of Hemophilia: A 30-Year Review
A retrospective of the World Federation of Hemophilia’s IHTC program: its aims and objectives, achievements and lessons learned, and directions for the future.
Key Issues in Hemophilia Treatment Part 2: Organizing a National Programme for Comprehensive Hemophilia Care
Addresses the considerations for establishing a national programme for comprehensive hemophilia care.
Key Issues in Hemophilia Treatment Part 1: Products
An overview of the issues surrounding the collection, manufacture, pricing, and marketing of factor replacement products.
Control of Haemophilia: Haemophilia Care in Developing Countries Report of a joint WHO/WFH Meeting
This joint WFH/WHO report outlines the possibilities and priorities for hemophilia care delivery in the developing world
Musculoskeletal Complications of Hemophilia: The Joint
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Japanese, Russian This monograph describes the effects of acute and recurrent bleeding on joint health and offers strategies to preserve joint function.
Musculoskeletal Complications of Hemophilia: The Joint – Japanese
Also Available In: English, Spanish, Arabic This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or […]
Guidelines for the Development of a National Programme for Haemophilia
Jointly produced by the WFH and WHO, this publication provides guidance on the development of a successful national care program for hemophilia.
Report of a joint WHO/WFH Meeting on the control of haemophilia: Modern Treatment of Haemophilia
This joint WFH/WHO report reviews those issues surrounding management of hemophilia and its complications.
Report on a joint WHO/WFH meeting on the control of haemophilia: Carrier detection and prenatal diagnosis
Updates the 1977 WHO/WFH Memorandum on Methods for the Detection of Haemophilia Carriers, in view of the recent explosive development of DNA technology and their continuing simplification.