The Tragic History of AIDS in the Hemophilia Population, 1982–1984
This paper chronicles the initial spread of HIV and subsequent AIDS epidemic in the hemophilia population, from the perspective of epidemiologist Dr. Bruce Evatt, who was instrumental in identifying HIV as a blood-borne disease.
Developing and Sustaining an Effective Lobbying Campaign
A hemophilia organization can advocate for change with doctors, hospitals, health authorities, government officials, or politicians. This publication outlines the various steps in putting together an integrated lobbying strategy.
Good Governance
Not-for-profit organizations like hemophilia organizations need to perform to a very high professional level in order to meet the standards set by governments, regulators, industry, and others with whom they associate.
Fundraising
Raising funds requires careful research and detailed planning, as well as creativity and good business practices. This publication is intended to help volunteers and staff of hemophilia societies support their work through fundraising.
Guidelines for Dental Treatment of Patients with Inherited Bleeding Disorders
The purpose of these guidelines is to provide a basis for the development of local protocols for the dental treatment of patients with inherited bleeding disorders. The publication highlights the use of local hemostatic techniques to make judicious use of the amount of clotting factor concentrates used.
The Rare Coagulation Disorders
A quick overview of the epidemiology, diagnosis, and treatment of each of the rare factor deficiencies.
Exercises for People with Hemophilia – Traditional Chinese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for […]
Exercises for People with Hemophilia – Serbian
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible […]
Exercises for People with Hemophilia – Portuguese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible […]
Exercises for People with Hemophilia – Polish
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible […]
Exercises for People with Hemophilia – Lithuanian
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for […]
Exercises for People with Hemophilia – Latvian
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible […]