How to Write and Publish a Research Paper in Haemophilia
Since hemophilia is a rare disorder, publication of a research paper relating to hemophilia is sometimes difficult to achieve in mainstream journals. This monograph focuses on publication in the journal Haemophilia, which has the specialized readership of the hemophilia community, and gives many helpful tips for first-time authors.
Guidelines for the Management of Hemophilia
The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Portuguese, Ukrainian The 2nd edition is available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission from the WFH, by NMOs: Azerbaijani, Polish, Traditional Chinese For additional resources, such […]
Fibrinolytic Inhibitors in the Management of Bleeding Disorders
A description of the mechanism of action of fibrinolytic inhibitors and their use in the treatment of inherited bleeding disorders including hemophilia A and B, von Willebrand disease, and platelet disorders.
Mild Hemophilia
A discussion of the mild forms of hemophilia A and hemophilia B, from epidemiology and molecular basis, via diagnosis, to the treatment options available.
Acquired Hemophilia
Acquired hemophilia is a rare condition caused by the production of autoantibodies, which inactivate factor VIII. This paper provides an overview of this condition that affects both men and women, its clinical features, epidemiology, laboratory diagnosis, and management.
Rehabilitation of Muscle Dysfunction in Hemophilia
This paper describes physiotherapy management following acute muscle bleeds and the assessment and treatment of muscle imbalances that may occur in hemophilia.
Desmopressin (DDAVP) in the Treatment of Bleeding Disorders
This report reviews the spectrum of indications of desmopressin in the treatment of bleeding disorders.
Guidelines for the Management of Hemophilia – Polish
The 3rd edition is available in: English, French, Spanish, Arabic, Russian The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Portuguese, Ukrainian The 2nd edition is also available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission […]
Guidelines for the Management of Hemophilia – Traditional Chinese
The 3rd edition is available in: English, French, Spanish, Arabic, Russian The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Portuguese, Ukrainian The 2nd edition is also available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission […]
Guidelines for the Management of Hemophilia – Azerbaijani
The 3rd edition is available in: English, French, Spanish, Arabic, Russian The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Portuguese, Ukrainian The 2nd edition is also available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission […]
Carriers and Women with Hemophilia – Japanese
The 2023 edition is available in: English, Spanish, French This edition is also available in: Arabic, Russian, Simplified Chinese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Setswana, Traditional Chinese 多くの血友病保因者も血友病の症状を経験します。なかには何年も出血性疾患と診断されたり疑われたりすることのないまま暮らしている女性もいます。
Living with Hemophilia: An interview with Mark Skinner
Previous WFH President Mark Skinner shares his personal experience of living with hemophilia and shows how he treats the disorder with an infusion of clotting factor concentrate. The opinions expressed in these videos are those of the individual panelists and not the official position of the World Federation of Hemophilia.