Acquired Hemophilia
Acquired hemophilia is a rare condition caused by the production of autoantibodies, which inactivate factor VIII. This paper provides an overview of this condition that affects both men and women, its clinical features, epidemiology, laboratory diagnosis, and management.
Rehabilitation of Muscle Dysfunction in Hemophilia
This paper describes physiotherapy management following acute muscle bleeds and the assessment and treatment of muscle imbalances that may occur in hemophilia.
Desmopressin (DDAVP) in the Treatment of Bleeding Disorders
This report reviews the spectrum of indications of desmopressin in the treatment of bleeding disorders.
Guidelines for the Management of Hemophilia – Polish
The 3rd edition is available in: English, French, Spanish, Arabic, Russian The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Portuguese, Ukrainian The 2nd edition is also available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission […]
Guidelines for the Management of Hemophilia – Traditional Chinese
The 3rd edition is available in: English, French, Spanish, Arabic, Russian The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Portuguese, Ukrainian The 2nd edition is also available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission […]
Guidelines for the Management of Hemophilia – Azerbaijani
The 3rd edition is available in: English, French, Spanish, Arabic, Russian The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Portuguese, Ukrainian The 2nd edition is also available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission […]
Carriers and Women with Hemophilia – Japanese
The 2023 edition is available in: English, Spanish, French This edition is also available in: Arabic, Russian, Simplified Chinese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Setswana, Traditional Chinese 多くの血友病保因者も血友病の症状を経験します。なかには何年も出血性疾患と診断されたり疑われたりすることのないまま暮らしている女性もいます。
Living with Hemophilia: An interview with Mark Skinner
Previous WFH President Mark Skinner shares his personal experience of living with hemophilia and shows how he treats the disorder with an infusion of clotting factor concentrate. The opinions expressed in these videos are those of the individual panelists and not the official position of the World Federation of Hemophilia.
Report on the Annual Global Survey 2010
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.
Structure and Functions of Comprehensive Hemophilia Treatment Centres
Also Available In: Japanese Access to a comprehensive hemophilia treatment centre (HTC) is a critical component of care. This fact sheet outlines how HTCs are set up and the ways in which they improve the overall health and well-being of patients with bleeding disorders.
Proceedings of the WFH’s Seventh Global Forum on the Safety and Supply of Treatment Products for Bleeding Disorders
A summary of discussions held at the World Federation of Hemophilia’s Global Forum on the Safety and Supply of Hemophilia Treatment Products, which brings together patient groups, healthcare providers, regulators, industry representatives, and not-for-profit fractionators.
Hemophilia Societies: Challenges and Development
Outlines the common challenges faced by hemophilia societies at various stages of development and offers practical solutions to help these organizations meet the needs of people with bleeding disorders.