Current Management of Patients with Acquired von Willebrand Syndrome (AVWS): a 2016 update
In the Wednesday afternoon session on von Willebrand disease (VWD), Augusto B. Federici provides a 2016 update on the management of patients with acquired von Willebrand syndrome (AVWS).
Factor VII: From fundamental to bedside
In the Wednesday morning session on rare and ultra-rare bleeding disorders, Jean-François Schved discusses FVII deficiency, one of the more frequent rare bleeding disorders, from the fundamentals to the bedside.
Mechanisms of Tolerance: Immune tolerance induction
In the Monday afternoon session on alternative therapies in the management of inhibitors, David Lillicrap explores the mechanisms of tolerance that are key to immune tolerance induction.
Preventing Bleeds by Treatment: New era for hemophilia
In the Vice President Medical’s plenary of the WFH 2016 World Congress, Marijke van den Berg, discusses how bleeds may be prevented by treatment in a new era for hemophilia which she qualifies as exciting times.
eLearning Modules
Each WFH eLearning Program consists of a series of educational modules designed for individual self-directed or small-group learning. Educational content about hemophilia and other bleeding disorders is brought to life with detailed colour illustrations, interactive features, a glossary of terms, and linked resources for further reading. There are even quizzes, and progress checks so that […]
Planning and Initiating Projects: A Guide for Emergent NMOs
Volunteer team members, and their beneficiaries, often have differing opinions on what projects should be of highest priority for an organization. It is essential to reach agreement on your priorities in a relatively quick and efficient manner and to coordinate the team’s energies, in order to be the most effective. This guide provides strategies for […]
Hemophilia Patient Organization Self-Assessment
A self-assessment is a useful exercise for organizations to take a closer look at what they do and how they do it. The process can help identify strengths and weaknesses and guide strategic planning. In 2011, the WFH developed this self-assessment specifically for its national member organizations (NMOs). It features a scoring system to evaluate […]
Interactive Graphs of Annual Global Survey Data
The WFH Annual Global Survey (AGS) data includes select demographic and other data on people with hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders throughout the world. This interactive online tool allows users to build custom graphs to analyze and present this data. The resulting plots make excellent advocacy and educational tools.
Abstracts of the XXXI International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains abstracts presented at the XXXI WFH Congress, Melbourne, Australia, 11-15 May 2014.
Online CFC Registry
Factor VIII Inhibitor Assay – Lab Manual Video
This step-by-step video clearly demonstrates the correct technique for the execution of the manual assay for the presence FVIII inhibitors. Supplementing the Lab Manual written protocol (Section 28), it also explains the theory behind the assay, details the important reagents, discusses the challenges posed by limited resources, and works through the plotting and interpretation of […]
One-Stage Assay of Factor VIII (FVIII) – Lab Manual Video
This step-by-step video clearly demonstrates the correct technique for the execution of the most commonly used manual technique in the diagnosis of bleeding disorders: the one-stage assay for FVIII. Supplementing the Lab Manual written protocol (Section 23), it also explains the theory behind the assay, details the important reagents, discusses the challenges posed by limited […]