Hemophilia Patient Organization Self-Assessment
A self-assessment is a useful exercise for organizations to take a closer look at what they do and how they do it. The process can help identify strengths and weaknesses and guide strategic planning. In 2011, the WFH developed this self-assessment specifically for its national member organizations (NMOs). It features a scoring system to evaluate […]
Interactive Graphs of Annual Global Survey Data
The WFH Annual Global Survey (AGS) data includes select demographic and other data on people with hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders throughout the world. This interactive online tool allows users to build custom graphs to analyze and present this data. The resulting plots make excellent advocacy and educational tools.
Abstracts of the XXXI International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains abstracts presented at the XXXI WFH Congress, Melbourne, Australia, 11-15 May 2014.
Online CFC Registry
Factor VIII Inhibitor Assay – Lab Manual Video
This step-by-step video clearly demonstrates the correct technique for the execution of the manual assay for the presence FVIII inhibitors. Supplementing the Lab Manual written protocol (Section 28), it also explains the theory behind the assay, details the important reagents, discusses the challenges posed by limited resources, and works through the plotting and interpretation of […]
One-Stage Assay of Factor VIII (FVIII) – Lab Manual Video
This step-by-step video clearly demonstrates the correct technique for the execution of the most commonly used manual technique in the diagnosis of bleeding disorders: the one-stage assay for FVIII. Supplementing the Lab Manual written protocol (Section 23), it also explains the theory behind the assay, details the important reagents, discusses the challenges posed by limited […]
APTT – Lab Manual Video
This step-by-step video clearly demonstrates the correct technique for the execution of the fundamental manual technique that constitutes the basis for the most commonly used assays in the diagnosis of bleeding disorders: the activated partial thromboplastin time (APTT). Supplementing the Lab Manual written protocol (Section 13), it also explains the theory behind the assay, details […]
Menorrhagia-Specific Screening Tool
Menorrhagia-Specific Screening Tool A3uthors/developersPhilipp CS, Faiz A, Dowling NF, Beckman M, Owens S, Ayers C, Bachmann G QuestionnaireScoring key N.B.: These scores are posted with the permission of the developers.
Epistaxis Scoring System
Epistaxis Scoring System (ESS) Authors/developersKatsanis E, Luke K-H, Hsu E, Li M, Lillicrap D Scoring system N.B.: These scores are posted with the permission of the developers.
Pictorial Blood Loss Assessment Chart
Pictorial Blood Loss Assessment Chart (PBAC) Authors/developersHigham JM, O’Brien PMS, Shaw RW Chart N.B.: These scores are posted with the permission of the developers.
Šrámek Bleeding Score
Šrámek Bleeding Score Authors/developersŠrámek A, Eikenboom JCJ, Briet E, Vandenbroucke JP, Rosendaal FR Questionnaire and scoring key N.B.: These scores are posted with the permission of the developers.
Pediatric Bleeding Questionnaire (PBQ)
Pediatric Bleeding Questionnaire (PBQ) Authors/developersBowman M, Riddel J, Rand ML, Tosetto A, Silva M, James PD Questionnaire and scoring key N.B.: These scores are posted with the permission of the developers.