Diagnosis of von Willebrand Disease (VWD)
In the Wednesday afternoon session on von Willebrand disease (VWD) Jeroen C.J. Eikenboom explains the diagnosis of von Wilebrand Disease (VWD).
Management of Women with VWD
In the Sunday afternoon joint Laboratory Sciences and VWD Professional Development Workshop, Andra H. James explains the unique issues in the management of women with von Willebrand Disease (VWD). This talk was part of the joint Laboratory Sciences and VWD Professional Development Workshop. See below for the other talks in this workshop:
Stem Cell Gene Therapy of Hemophilia A
In the Tuesday morning session on gene therapy, Christopher B. Doering presents advances in stem cell gene therapy of hemophilia A.
Genomics of Platelet Disorders
In the Wednesday morning medical plenary session, Andrew Mumford presents an overview of the genomics of platelet disorders.
Novel Assays for von Willebrand Factor (VWF) Functional Activity
In the Sunday afternoon joint Laboratory Sciences and VWD Professional Development Workshop, Imre Bodó, explores new von Willebrand factor (VWF) activity assays. This talk was part of the joint Laboratory Sciences and VWD Professional Development Workshop. See below for the other talks in this workshop:
Current Management of Patients with Acquired von Willebrand Syndrome (AVWS): a 2016 update
In the Wednesday afternoon session on von Willebrand disease (VWD), Augusto B. Federici provides a 2016 update on the management of patients with acquired von Willebrand syndrome (AVWS).
Factor VII: From fundamental to bedside
In the Wednesday morning session on rare and ultra-rare bleeding disorders, Jean-François Schved discusses FVII deficiency, one of the more frequent rare bleeding disorders, from the fundamentals to the bedside.
Mechanisms of Tolerance: Immune tolerance induction
In the Monday afternoon session on alternative therapies in the management of inhibitors, David Lillicrap explores the mechanisms of tolerance that are key to immune tolerance induction.
Preventing Bleeds by Treatment: New era for hemophilia
In the Vice President Medical’s plenary of the WFH 2016 World Congress, Marijke van den Berg, discusses how bleeds may be prevented by treatment in a new era for hemophilia which she qualifies as exciting times.
eLearning Modules
Each WFH eLearning Program consists of a series of educational modules designed for individual self-directed or small-group learning. Educational content about hemophilia and other bleeding disorders is brought to life with detailed colour illustrations, interactive features, a glossary of terms, and linked resources for further reading. There are even quizzes, and progress checks so that […]
Planning and Initiating Projects: A Guide for Emergent NMOs
Volunteer team members, and their beneficiaries, often have differing opinions on what projects should be of highest priority for an organization. It is essential to reach agreement on your priorities in a relatively quick and efficient manner and to coordinate the team’s energies, in order to be the most effective. This guide provides strategies for […]
Hemophilia Patient Organization Self-Assessment
A self-assessment is a useful exercise for organizations to take a closer look at what they do and how they do it. The process can help identify strengths and weaknesses and guide strategic planning. In 2011, the WFH developed this self-assessment specifically for its national member organizations (NMOs). It features a scoring system to evaluate […]