Module 13 – Disclosure | Workshop for Psychosocial Professionals
This module was presented by Susan Cutter at the Virtual Workshop for Psychosocial Professionals in Africa on June 8, 2021. To view other modules from this series, please click here. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on […]
Module 4 – Assessing and enhancing coping strategies: fostering resilience | Workshop for Psychosocial Professionals – Portuguese
This module was presented by Diane Standish at the Virtual Workshop for Psychosocial Professionals in Africa on June 8, 2021. To view other modules from this series, please click here. This WFH workshop was originally presented in English. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]
Module 13 – Disclosure | Workshop for Psychosocial Professionals – Portuguese
This module was presented by Susan Cutter at the Virtual Workshop for Psychosocial Professionals in Africa on June 8, 2021. To view other modules from this series, please click here. This WFH module was originally presented in English. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]
Module 10 – Coping with complications of joint disease | Workshop for Psychosocial Professionals
This module was presented by Mohsena Olath-Carramtally at the Virtual Workshop for Psychosocial Professionals in Southeast Asia on May 29, 2021. To view other modules from this series, please click here. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation […]
What is Prophylaxis?
The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi, Setswana This patient handbook contains basic information about prophylaxis, the regular infusion of clotting factor concentrates in order to prevent bleeding. Prophylaxis is the goal of treatment for people with severe hemophilia, allowing […]
Musculoskeletal: Hot topic debates | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit will feature three controversial topics debated by experts in their field. Hortensia De la Corte Rodriguez, Annette von Drygalski, Mauricio Silva, David Dalstrom, Janaina Bosso and David Stephensen will discuss point-of-care ultrasound (POCUS) image capture by patients, ankle arthrodesis vs. arthroplasty, and HJHS vs. functional measurement. The […]
Management of comorbidities in bleeding disorders | Virtual Summit 2020
In this session from WFH 2020 Virtual Summit, Mike Makris, Pal Andre Holme and Christine Kempton explore the incidence and management of the comorbidities of the aging people with hemophilia, with a focus on cardiovascular disease and osteoporosis. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]
Free papers: Late breaking 2 | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Saliou Diop, Ampaiwan Chuansumrit, Silvia Riva and Ahmad Tarawah discuss: “Connection between a local Registry and World Bleeding Disorders Registry: Automatic hemophilia patients’ data transfer” “Psychological status of older patients with hemophilia: results from the multicenter S+PHERA study” “Prevalence of bleeding symptoms among young adults in […]
Laboratory sciences: Replacement therapy and testing | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Steve Kitchen, Emmanuel Favaloro, Robert Gosselin and Geoffrey Kershaw discuss: How the emergence of chromogenic factor VIII testing has illuminated both discrepancies between testing methods and potential issues associated with product potency assessment How the creation of B-domain deleted recombinant factor VIII replacement product has initiated […]
Laboratory sciences: Laboratory issues and testing | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Steve Kitchen, Stefen Tiefenbacher, Anna Lowe and Annette Bowyer discuss: Gene therapy for FVIII and FIX: Will there be laboratory assay issues? Laboratory issues with isolated emicizumab therapy Laboratory issues when emicizumab and FVIII replacement are combined The WFH does not engage in the practice of […]
Strengthening comprehensive care: using data to inform clinical practice | November 11 2021
Listen to this 90-minute webinar, Strengthening comprehensive care: using data to inform clinical practice, presented on November 11, 2021. This is the last webinar in the PACT Comprehensive Care Series, designed to support healthcare providers in setting up and strengthening comprehensive care in their centres. Speakers included Dr. Catherine Lambert (Hematologist at the Division of […]
WFH Highlight: Impact challenges of bleeding disorders in women and girls | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Rezan Abdul-Kadir, Roshni Kulkarni, Michelle Lavin, Robert Sidonio and Tahira Zafar highlight the challenges women and girls experience in getting proper diagnosis, care, and treatment for their bleeding disorder. The speakers will address key issues such as reproductive challenges, diagnostic dilemmas, and treatment options for heavy […]