Resources

Report on the Annual Global Survey 2023

The Report on Annual Global Survey (AGS) includes demographic and treatment data, providing a global snapshot of people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders around the world. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For […]

What are fibrinogen disorders?

This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of fibrinogen disorders, including afibrinogenemia, hypofibrinogenemia, dysfibrinogenemia and hypodysfibrinogenemia. This publication was created in collaboration with the International Fibrinogen Physician and Patients Association. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific […]

Publishing in the Haemophilia Journal: Opportunities and challenges | WFH World Congress 2024

Publishing in Haemophilia—the official journal of the WFH—presents both opportunities and challenges for researchers and practitioners in the field. While it offers a platform to disseminate new findings and contribute to the scientific community, there are hurdles to be overcome such as rigorous peer reviews and the need to meet specific publication standards. Through interactive […]

WFH Shared Decision Making Workbook for Hemophilia Treatment

The WFH Shared Decision Making (SDM) Workbook is for people with hemophilia A or B and their healthcare team. It defines the best practice for shared decision-making in hemophilia treatment and care, and provides a guide for people with hemophilia, caregivers, and healthcare professionals to facilitate successful shared decision-making. The WFH SDM Tool is a […]

WBDR 2023 Data Report

The World Bleeding Disorders Registry (WBDR) 2023 Data Report provides aggregate data on more than 14,000 people with hemophilia & von Willebrand disease around the globe who are enrolled in the WBDR. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or […]

WFH Shared Decision Making for Hemophilia Webinar Series

The World Federation of Hemophilia (WFH) Shared decision-making (SDM) tool helps clinicians and people with hemophilia work together to make treatment decisions based on clinical evidence that balances risks and expected outcomes with patient preferences and values. Listen to three free 90-minute webinars covering the different hemophilia treatments and the applications of this important tool […]

3rd WFH Global Summit on Women and Girls with Bleeding Disorders (WGBD)

The chosen theme for this edition of the global summit centered on Equity and Access to Care for women and girls with bleeding disorders. Healthcare providers, people living with bleeding disorders, family members, national member organization leaders, and other stakeholders came together to discuss several topics including, the importance of data and the use of […]

Nurses Committee Webinars: how to write an abstract, prepare a poster, and present using PowerPoint

Welcome to this exciting project, a collaborative effort between the Nurses Committees of the European Association for Haemophilia and Allied Disorders (EAHAD), the International Society on Thrombosis and Hemostasis (ISTH), and the World Federation of Hemophilia (WFH). We worked together to increase the active participation of the nurses in bleeding disorder care during congresses. This […]

Circumcision in Hemophilia

This paper provides an overview of the Turkish method for circumcision in people with hemophilia, as well as appendices of the Israeli and Moroccan perspective. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the […]

Report on the Annual Global Survey 2022

The Report on Annual Global Survey (AGS) includes demographic and treatment data, providing a global snapshot of people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders around the world. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For […]

WFH Webinar on von Willebrand Disease | September 21, 2023

Listen to this 90-minute webinar presented on September 21, 2023 to learn about von Willebrand disease (VWD) in low-resource settings. Dr Michelle Lavin (Ireland), Dr Claudia Khayat (Lebanon), Dr Jecko Thachil (United Kingdom), Dr Augusto Federici (Italy) and Emily Ayoub (Canada) present global inequities in VWD registrations, survey results on VWD in the east Mediterranean […]