World Health Assembly Resolution: Global Action to Advance Health Equity for People with Hemophilia and Other Bleeding Disorders
People with bleeding disorders continue to face significant challenges in diagnosis, access to treatment and care around the world. To overcome these challenges, several WHO Member States—led by the government of Armenia, and co-sponsored by the governments of Bosnia & Herzegovina, Egypt, Georgia, Latvia, Malta, Morocco, Nepal, Paraguay, Spain, Sri Lanka and Togo—are leading efforts […]
Overcoming Challenges in Hemophilia Care
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psychosocial Committee: Kathaleen Schnur and Alice Oliver The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]
Psychosocial Support for Families at the Child’s Diagnosis Stage
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psychosocial Committee: Patricia Cabré and Silvina Graña The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]
Space to Talk, Room to Listen
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psycosocial Committee: Sarah Whitaker and Jane Portnoy The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]
Genetic Technologies for Hemophilia
This information sheet is designed to help understand the similarities, differences, and current state of knowledge for the existing genetic technologies for hemophilia. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends […]
WFH expert panel discusses WHO EML and EMLc update
The global bleeding disorders community reached a major milestone in 2025, as the World Health Organization updated both its Essential Medicines List (EML) and Essential Medicines List for Children (EMLc) to align with modern international guidelines for hemophilia and von Willebrand disease. Led by the World Federation of Hemophilia (WFH), this achievement reflects two years […]
Progress toward a cure for hemophilia: gene editing explained
The World Federation of Hemophilia (WFH) hosted an educational webinar titled “Progress toward a cure for hemophilia: gene editing explained” on November 25, 2025. In this session, Glenn Pierce, Vice President, Medical, World Federation of Hemophilia (U.S.A.) explored how cutting-edge genetic technologies are reshaping the future of hemophilia care. The objectives of the webinar were […]
Nurses Committee Webinars: How to write an abstract, prepare a poster, present using powerpoint, do a literature search in databases and read/critique an article
Welcome to this exciting project, a collaborative effort between the Nurses Committees of the European Association for Haemophilia and Allied Disorders (EAHAD), the International Society on Thrombosis and Hemostasis (ISTH), and the World Federation of Hemophilia (WFH). We worked together to increase the active participation of the nurses in bleeding disorder care during congresses. This […]
Report on the Annual Global Survey 2024
The Report on Annual Global Survey (AGS) includes demographic and treatment data, providing a global snapshot of people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders around the world. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For […]
WHO Essential Medicines List 2025 Update: Impact on Bleeding Disorders Community
The World Federation of Hemophilia invited representatives from its national member organizations, national governments, healthcare providers, industry partners, and other patient advocacy and scientific organizations from the global bleeding disorders community to an informational webinar on the recent milestone revisions to the World Health Organization (WHO) Essential Medicines List (EML). The objectives of this webinar […]
Summary of the 13th WFH Global Forum On Research and Treatment Products For Bleeding Disorders
A summary of discussions held at the Thirteenth WFH Global Forum on Research and Treatment Products for Bleeding Disorders which brings together patient groups, healthcare providers, researchers, regulators, and industry representatives. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation […]
Summary of the 12th WFH Global Forum On Research and Treatment Products For Bleeding Disorders
A summary of discussions held at the Twelfth WFH Global Forum on Research and Treatment Products for Bleeding Disorders which brings together patient groups, healthcare providers, researchers, regulators, and industry representatives. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation […]