Resources » WFH Shared Decision Making Workbook for Hemophilia Treatment

Year: 2024

Language: English

Author(s): World Federation of Hemophilia

Format: Document

WFH Shared Decision Making Workbook for Hemophilia Treatment


The WFH Shared Decision Making (SDM) Workbook is for people with hemophilia A or B and their healthcare team. It defines the best practice for shared decision-making in hemophilia treatment and care, and provides a guide for people with hemophilia, caregivers, and healthcare professionals to facilitate successful shared decision-making.

The WFH SDM Tool is a “living” tool that will be updated with new evidence twice per calendar year. The cutoff dates for new data or evidence are June 30 and December 31, with updates taking place in the following month(s). Any new evidence after these cutoffs will be included in the next update.

Supporting Resources

SDM Tool

The WFH SDM Tool is supported by an educational grant from BioMarin Pharmaceutical Inc., CSL Behring, Novo Nordisk, Pfizer, and Spark Therapeutics.

The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

The WFH does not promote any particular pharmaceutical product and any mention of any commercial brand in this presentation is strictly for educational purposes.