Carriers and Women with Hemophilia – Setswana
The 2023 edition is available in: English, Spanish, French This edition is also available in: Arabic, Russian, Simplified Chinese, Japanese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Traditional Chinese This is not an official WFH translation. This resource has been translated with permission […]
Women and girls with hemophilia | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Roseline d’Oiron, Sarah O’Brien and Andra James discuss issues on women and girls with hemophilia (WGWH), including female carriers with low levels of FVIII or FIX and/or bleeding experiences. The key points that will be covered are the importance of early diagnosis during childhood of affected […]
Snapshot: ASH ISTH NHF WFH Guideline Recommendations for the Management of von Willebrand Disease (VWD)
This one-page summary presents the highlights of the ASH ISTH NHF WFH Guidelines on the Management of von Willebrand Disease (VWD). It outlines what is covered in the guidelines, why they matter and who they affect. Click here to access the full ASH ISTH NHF WFH VWD Guidelines.
Gene therapy: Is robust scientific inquiry the missing factor?
Listen to this 60-minute interactive webinar presented on 11 December 2020 to explore patient perspectives related to scientific inquiry of gene therapy. The session was moderated by David Page (Canadian Hemophilia Society). The panelists included Glenn Pierce, MD, PhD (WFH Vice President, Medical), Radoslaw Kaczmarek, PhD (Polish Hemophilia Society), Brian O’Mahony (Irish Haemophilia Society), and […]
Report on the Annual Global Survey 2019
The Report on the Annual Global Survey (AGS) includes demographic and treatment data, providing a global snapshot of people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders around the world.
Collaborations, Connections and COVID19: Twinning Stories from Near and Far
This 1-hour webinar was moderated by Deniece Chevannes (USA), Chair of the HOT Twinning Committee on September 17, 2020. Patricia Silva, MD (Mozambique), Yuri Zhulyov (Russia), and Santosh Manivannan (India) discussed how their Twinning partnerships are coping with the COVID-19 pandemic. Stephanie Pineda, WFH Program Coordinator, presented Twinning Program highlights. The webinar also includes a […]
Youth Resilience During COVID-19 – Staying Strong Together!
Listen to this 1-hour webinar that took place on 3 September 2020 to learn stories of youth engagement around the world and wellness tips from a psychosocial expert. The panel of youth speakers included Salomón Cárcamo Bonilla (Honduras), Jessica Page (U.K.) and Jodarsen P. Arnachellum (Mauritius). Edward Kuebler (U.S.A), outgoing WFH Psychosocial Committee chair, provided […]
Dental care for people with bleeding disorders during COVID-19— what has changed?
Listen to this 1-hour webinar presented on 3 June 2020, chaired by Glenn Pierce, MD, PhD (WFH VP Medical). Presenters Maria Elvira Pizzigatti Correa (Brazil), WFH Dental Committee member; Zikra Alkhayal (Saudi Arabia), WFH Dental Committee member; and Alison Dougall (Ireland), past Chair of the WFH Dental Committee offer recommendations on how to deal with […]
Stepping up and not stepping out: a nursing and psychosocial perspective to COVID-19
Listen to this 1-hour webinar presented on 4 May 2020, chaired by Glenn Pierce, MD, PhD (WFH VP Medical). Kate Khair (U.K.), WFH Nurses Committee chair and Marlène Beijlevelt (Netherlands), WFH Nurses Committee member, presented a nursing perspective on how to deal with the current pandemic. Ed Kuebler (U.S.A), WFH Psychosocial Committee chair and Richa […]
Report on the Annual Global Survey 2018
This report celebrates the 20th anniversary of the Annual Global Survey (AGS). It includes demographic and treatment data, providing a global snapshot of people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders around the world.
Report on the Annual Global Survey 2017
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Report on the Annual Global Survey 2016
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.