International Women’s Day webinar | March 8 2022
Listen to this 90-minute webinar presented on March 8, 2022, to learn about women and girls with bleeding disorders. The webinar is a joint collaboration between the WFH Women and Girls with Bleeding Disorders (WGBD) committee and the WFH von Willebrand Disease (VWD) and Rare Bleeding Disorders (RBD) committee. Speakers will include Dawn Rotellini (U.S.A), […]
Multidisciplinary plenary: Women ageing gracefully | Virtual Summit 2020
In this plenary from the WFH 2020 Virtual Summit, Kate Khair, Michelle Lavin, Rezan Abdul-Kadir & Jameela Sathar will address women’s long-term health issues and improve screening, as well as answer any questions from the virtual audience. This plenary has a special emphasis on women and those who care for them, and aims to identify […]
Frequently Asked Questions on Women and Girls with Bleeding Disorders – German
This document is also available in: English, French, Spanish This is not an official WFH translation. This resource has been translated with permission, and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or for any errors or […]
Advocating for Better Care for People with VWD | September 1 2021
Listen to this 90-minute webinar presented on September 1, 2021 to learn about advocating for better care using the ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of von Willebrand Disease (VWD). The session was moderated by Magdy El Ekiaby, MD (WFH VWD & RBD Committee). Susie Couper (Member of the WFH […]
Psychosocial Resource Hub
The WFH Virtual Workshops for Psychosocial Professionals series was developed in collaboration with the WFH Psychosocial Committee. The series targets professionals who work with people with bleeding disorders and aims to provide useful and practical tools for their work. The topics covered in this educational series are based on the modules of the WFH Standardized […]
WFH Highlight: Impact challenges of bleeding disorders in women and girls | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Rezan Abdul-Kadir, Roshni Kulkarni, Michelle Lavin, Robert Sidonio and Tahira Zafar highlight the challenges women and girls experience in getting proper diagnosis, care, and treatment for their bleeding disorder. The speakers will address key issues such as reproductive challenges, diagnostic dilemmas, and treatment options for heavy […]
Report on the Annual Global Survey 2020
The Report on Annual Global Survey (AGS) includes demographic and treatment data, providing a global snapshot of people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders around the world.
Hemophilia in Pictures – Indonesian
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese TThis is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for […]
Frequently Asked Questions on Women and Girls with Bleeding Disorders
This resource has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: German Many women and girls also experience symptoms of Hemophilia. Some women live with their symptoms for years without being diagnosed or even suspecting they have a bleeding disorder. This fact sheet includes answers to questions such […]
Carriers and Women with Hemophilia – Traditional Chinese
The 2023 edition is available in: English, Spanish, French This edition is also available in: Arabic, Russian, Simplified Chinese, Japanese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Setswana This is not an official WFH translation. This resource has been translated with permission […]
Improving Care for People with VWD | May 18 2021
Listen to this 90-minute webinar presented on May 18, 2021 to learn about the recently published ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of von Willebrand Disease (VWD). The session was moderated by Nathan Connell (Assistant Professor of Medicine, Harvard Medical School). Michelle Lavin (WFH VWD & RBD Committee Chair), Baiba […]
Guidelines for the Management of Hemophilia – Ukrainian
The 3rd edition is available in: English, French, Spanish, Arabic, Russian The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Portuguese The 2nd edition is available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission from the […]