Year: 2017
Language: English
Author(s): World Federation of Hemophilia
The WFH Annual Global Survey (AGS) mini reports are advocacy tools that provide more in-depth perspective and context to AGS data. Lack of diagnosis and treatment for women and girls with bleeding disorders remains a challenge in our community. Highlighting gender data from the AGS can help bring awareness to the issues facing women and girls.
The presentations and discussions of the second edition of the WFH Global Policy and Access Summit (GPAS) center around improving
The Report on Annual Global Survey (AGS) includes demographic and treatment data, providing a global snapshot of people with hemophilia,
In this workshop from the WFH 2022 World Congress, listen to Miguel Escobar, Alfonso Iorio, Donna Coffin, Ellia Tootoonchian, Emily
The World Bleeding Disorders Registry (WBDR) 2021 Data Report provides aggregate data on more than 9,000 people with hemophilia around
In this session from the WFH 2020 Virtual Summit, Mayss Naccache, Emily Ayoub, Toong Youttananukorn and Ellia Tootoonchian discuss: “The
This workshop from the WFH 2020 Virtual Summit, presented by Ellia Tootoonchian, Mark Skinner, Donna Coffin, Alfonso Iorio, Emna Gouider-Belhadjali