Collaborations, Connections and COVID19: Twinning Stories from Near and Far
This 1-hour webinar was moderated by Deniece Chevannes (USA), Chair of the HOT Twinning Committee on September 17, 2020. Patricia Silva, MD (Mozambique), Yuri Zhulyov (Russia), and Santosh Manivannan (India) discussed how their Twinning partnerships are coping with the COVID-19 pandemic. Stephanie Pineda, WFH Program Coordinator, presented Twinning Program highlights. The webinar also includes a […]
Youth Resilience During COVID-19 – Staying Strong Together!
Listen to this 1-hour webinar that took place on 3 September 2020 to learn stories of youth engagement around the world and wellness tips from a psychosocial expert. The panel of youth speakers included Salomón Cárcamo Bonilla (Honduras), Jessica Page (U.K.) and Jodarsen P. Arnachellum (Mauritius). Edward Kuebler (U.S.A), outgoing WFH Psychosocial Committee chair, provided […]
WFH Global VWD Call to Action: The World’s Response
Listen to this webinar which took place on August 26, 2020. Moderated by Dawn Rotellini (USA), the webinar features an overview of von Willebrand Disease by Magdy El Ekiaby, MD (Egypt), information about the Global VWD Call to Action by Luisa Durante (Canada), and presentations by Chedia Aroua (Tunisia), Cassie Osejo (Panama), and Louise Ellwood […]
WBDR 2019 Data Report
The World Bleeding Disorders Registry (WBDR) 2019 Data Report provides aggregate data on more than 4,000 people with hemophilia around the globe who are registered in the WBDR.
Dental care for people with bleeding disorders during COVID-19— what has changed?
Listen to this 1-hour webinar presented on 3 June 2020, chaired by Glenn Pierce, MD, PhD (WFH VP Medical). Presenters Maria Elvira Pizzigatti Correa (Brazil), WFH Dental Committee member; Zikra Alkhayal (Saudi Arabia), WFH Dental Committee member; and Alison Dougall (Ireland), past Chair of the WFH Dental Committee offer recommendations on how to deal with […]
Stepping up and not stepping out: a nursing and psychosocial perspective to COVID-19
Listen to this 1-hour webinar presented on 4 May 2020, chaired by Glenn Pierce, MD, PhD (WFH VP Medical). Kate Khair (U.K.), WFH Nurses Committee chair and Marlène Beijlevelt (Netherlands), WFH Nurses Committee member, presented a nursing perspective on how to deal with the current pandemic. Ed Kuebler (U.S.A), WFH Psychosocial Committee chair and Richa […]
What is von Willebrand Disease – Bengali
The 2023 edition is available in: English, Spanish, French This edition is also available in: Arabic, Russian, Simplified Chinese, Japanese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Polish, Farsi, Setswana This patient handbook contains basic information about the inheritance, diagnosis, symptoms and […]
Report on the Annual Global Survey 2017
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Report on the Annual Global Survey 2016
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Annual Global Survey Mini Report 1: Gender
The WFH Annual Global Survey (AGS) mini reports are advocacy tools that provide more in-depth perspective and context to AGS data. Lack of diagnosis and treatment for women and girls with bleeding disorders remains a challenge in our community. Highlighting gender data from the AGS can help bring awareness to the issues facing women and […]
In-HemoAction Card Game
Using the universal language of pictures, children around the world can learn about hemophilia in a fun, easy to understand, and interactive way. The In-HemoAction cards teach children how to prevent bleeds and manage hemophilia. An update of the hugely popular HemoAction game, this edition features additional content covering prophylaxis, inhibitors, bypassing agents, immune tolerance […]
Report on the Annual Global Survey 2015
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.