Old keyword: eL_bleeding

Advocating for Better Care for People with VWD | September 1 2021 — Russian

Listen to this 90-minute webinar presented on September 1, 2021 to learn about advocating for better care using the ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of von Willebrand Disease (VWD). The session was moderated by Magdy El Ekiaby, MD (WFH VWD & RBD Committee). Susie Couper (Member of the WFH […]

Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | December 16 2021 – Russian

Listen to this 2-hour webinar presented on December 16, 2021, to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. Glenn Pierce (WFH Vice President, Medical), Lochana Nanayakkara (WFH Dental Committee chair), Bruce Luxon (Chair, Department of Medicine), Cedric Hermans (WFH Medical Board Member), Nathalie Roussel (Associate professor) […]

Что такое профилактическое лечение?

The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi, Setswana This patient handbook contains basic information about prophylaxis, the regular infusion of clotting factor concentrates in order to prevent bleeding. Prophylaxis is the goal of treatment for people with severe hemophilia, allowing […]

Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | October 12 2021 — Russian

Listen to this 2-hour webinar presented on October 12, 2021 to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. The session was moderated by Glenn Pierce (WFH Vice President, Medical). Gianluigi Pasta (WFH MSK Committee chair), Paul McLaughlin (Specialist Physiotherapist), Adolfo Llinas (Medical director), Robert Klamroth (Department […]

WFH Guidelines for the Management of Hemophilia | Virtual Summit 2020 — Russian

In this session from the WFH 2020 Virtual Summit, Glenn Pierce, Alok Srivastava, Steven Pipe, Manuel Carcao, Margaret Ragni and Johnny Mahlangu present and discuss updates to the WFH Guidelines for the Management of Hemophilia. Discussion topics include hemostatic agents, prophylaxis, inhibitors, and treatment of specific hemorrhages. Click on the icon below to access more […]

Redefining prophylaxis in the modern era | Virtual Summit 2020 – Russian

The currently evolving novel therapies for the management of hemophilia has ushered in a new era characterized by improved prophylaxis targets and outcomes. In this session from the WFH 2020 Virtual Summit, Johnny Mahlangu, Victor Blanchette, Robert Klamroth and Emna Gouider redefine prophylaxis in the modern era by revisiting its definition, presenting data to support […]

In-HemoAction Card Game — Russian

Using the universal language of pictures, children around the world can learn about hemophilia in a fun, easy to understand, and interactive way. The In-HemoAction cards teach children how to prevent bleeds and manage hemophilia. An update of the hugely popular HemoAction game, this edition features additional content covering prophylaxis, inhibitors, bypassing agents, immune tolerance […]

Guidelines for the Management of Hemophilia — Russian

The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Portuguese, Ukrainian The 2nd edition has also been translated into the following languages, with permission from the WFH, by NMOs: Azerbaijani, Polish, Traditional Chinese This third edition, fully reviewed by global experts, contains clinical practice recommendations […]

Carriers and Women with Hemophilia — Russian

This edition is also available in: Japanese This edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Setswana, Traditional Chinese Many carriers of hemophilia also experience symptoms of the disorder. Some women live with their symptoms for years without being diagnosed or even suspecting they have […]

What is von Willebrand Disease? — Russian

This edition is also available in: Japanese This edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi, Polish, Bengali, Setswana This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of von Willebrand disease.