Guidelines for the Management of Hemophilia – Portuguese

The 3rd edition is available in: English, French, Spanish, Arabic, Russian The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Ukrainian The 2nd edition is available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission from the WFH, […]

Frequently Asked Questions on Women and Girls with Bleeding Disorders – German

This document is also available in: English, French, Spanish This is not an official WFH translation. This resource has been translated with permission, and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or for any errors or […]

The WFH Gene Therapy and World Bleeding Disorder Registries | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Barbara Konkle, Alfonso Iorio & Catherine Lambert will discuss & highlight two key WFH data programs: The WFH Gene Therapy Registry (GTR) and the WFH World Bleeding Disorders Registry (WBDR). With gene therapy for hemophilia on the horizon, there is an urgent need to develop a […]

Physical activity for joint health and wellness | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Paul McLaughlin, Adolfo Llinas, Pamela Narayan & Chavez Edgecombe discuss how exercising joints and muscles can reduce spontaneous bleeding in the long term. This session will aim to demonstrate easy and practical methods in musculoskeletal care from orthopedist, physiotherapist and patient perspectives, including bone health without […]

Opening plenary | Virtual Summit 2020

This session from the WFH 2020 Virtual Summit is the official opening of the WFH Virtual Summit: Connecting the Global Bleeding Disorders Community. The WFH President, Mr. Alain Weill, will present welcoming remarks, along with the WFH VP (Medical), Dr. Glenn Pierce, and the WFH’s CEO, Mr. Alain Baumann, launching the first and exciting new […]

Nurses: Emerging hemophilia nursing skills | Virtual Summit 2020

This session from the WFH 2020 Virtual Summit, with Kate Khair, Amber Federizo, Michelle Witkop, Regina Butler & Cathy Harrison, will cover best evidence-based practices and will also look at how the role of nurses in delivering care will change dramatically over the coming years. The WFH does not engage in the practice of medicine […]

Musculoskeletal: Synovitis & synovectomy | Virtual Summit 2020

This session from the WFH 2020 Virtual Summit with Sébastien Lobet, Eline van Bergen, Sylvia Thomas & Mauricio Silva will address the current understanding of synovitis and its treatment options, with specific emphasis on chemical and radioactive synovectomy, surgical options, rehabilitation, and non-surgical management. The WFH does not engage in the practice of medicine and […]

Multidisciplinary plenary: Quality of life | Virtual Summit 2020

This plenary from the WFH 2020 Virtual Summit seeks to explore and explain the role of pain. Deon York, Lorimer Moseley and Dr. Bajan Singh will explore the new understanding of pain, and how that understanding can change one’s perspectives of dealing with pain, as well as an overview of what sleep is, how it […]

Advocating for Better Care for People with VWD | September 1 2021

Listen to this 90-minute webinar presented on September 1, 2021 to learn about advocating for better care using the ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of von Willebrand Disease (VWD). The session was moderated by Magdy El Ekiaby, MD (WFH VWD & RBD Committee). Susie Couper (Member of the WFH […]