FISH ou score relatif à l’autonomie fonctionnelle chez les hémophiles
Functional Independence Score in Hemophilia (FISH) – 2007 Authors/developers:Poonnoose PM, Padankatti S, Macaden AS, Srivastava A; Christian Medical College, Vellore, India. Instructions and questionnaireScoring sheet N.B. These scores are posted with the permission of the developers.
HJHS ou score relatif à la santé des articulations chez les hémophiles
Hemophilia Joint Health Score (HJHS) 2.1 Authors/developersFeldman BM, Funk S, Hilliard P, Van Der Net J, Zourikian N, Berstrom B-M, Engelbert RHH, Abad A, Petrini P, Manco-Johnson M, and the International Prophylaxis Study Group. In order to access the HJHS Toolkit materials registration is required on: https://ipsg.ca/hjhs-portal. For general information on the background and development […]
Questionnaire sur les saignements chez les enfants
Pediatric Bleeding Questionnaire (PBQ) Authors/developersBowman M, Riddel J, Rand ML, Tosetto A, Silva M, James PD Questionnaire and scoring key N.B.: These scores are posted with the permission of the developers.
Système d’évaluation de l’épistaxis
Epistaxis Scoring System (ESS) Authors/developersKatsanis E, Luke K-H, Hsu E, Li M, Lillicrap D Scoring system N.B.: These scores are posted with the permission of the developers.
MCMDM-1 mW
Molecular and Clinical Markers for the Diagnosis and Management of Type 1 (MCMDM-1) VWD Bleeding Questionnaire Authors/developers:Tosetto A, Rodeghiero F, Castaman G, Goodeve A, Federici AB, Batlle J, Meyer D, Fressinaud E, Mazurier C, Goudemand J, Eikenboom J, Schneppenheim R, Budde U, Ingerslev J, Vorlova Z, Habart D, Holmberg L, Lethagen S, Pasi J, Hill […]
Outil d’évaluation spécifique à la ménorragie
Menorrhagia-Specific Screening Tool Authors/developersPhilipp CS, Faiz A, Dowling NF, Beckman M, Owens S, Ayers C, Bachmann G QuestionnaireScoring key N.B.: These scores are posted with the permission of the developers.
Score relatif aux saignements de Šrámek
Šrámek Bleeding Score Authors/developersŠrámek A, Eikenboom JCJ, Briet E, Vandenbroucke JP, Rosendaal FR Questionnaire and scoring key N.B.: These scores are posted with the permission of the developers.
Grille d’évaluation illustrée des pertes sanguines
Pictorial Blood Loss Assessment Chart (PBAC) Authors/developersHigham JM, O’Brien PMS, Shaw RW Chart N.B.: These scores are posted with the permission of the developers.
HAL ou liste d’activités chez les hémophiles
Haemophilia Activities List (HAL) 2005 Authors/developersvan Genderen FR, van Meeteren NL, van der Bom JG, Heijnen L, De KP, van den Berg HM, Westers P, Helders PJ et al.; Van Creveldkliniek, University Medical Centre Utrecht, the Netherlands. Questionnaire N.B. These scores are posted with the permission of the developers. A more recent version of this […]
Score relatif à l’examen physique de la FMH (score de Gilbert)
World Federation of Hemophilia Physical Examination Score (also called the Gilbert Score) Authors/developersGilbert M, and the Orthopedic Advisory Committee of WFH. Questionnaire N.B. These scores are posted with the permission of the developers.
Parole aux Jeunes
La force de la Fédération mondiale de l’hémophilie (FMH) et de ses organisations nationales membres (ONM) réside dans l’engagement que prennent des leaders inspirants qui œuvrent chaque jour afin de promouvoir la vision du traitement pour tous. Pourtant, comme bon nombre d’organisations de patients peinent à impliquer les jeunes au sein de leurs communautés, il […]
Outil d’évaluation des saignements de l’ISTH
International Society on Thrombosis and Haemostasis/Scientific and Standardization Committee Bleeding Assessment Tool (ISTH BAT) Authors/developersRodeghiero F, Tosetto A, Abshire T, Arnold DM, Coller B, James P, Neunert C, Lillicrap D on behalf of the ISTH/SSC Joint VWF and Perinatal/Pediatric Haemostasis Subcommittees Working Group Questionnaire and scoring sheet N.B.: These scores are posted with the permission […]