Score relatif à l’examen physique de la FMH (score de Gilbert)
World Federation of Hemophilia Physical Examination Score (also called the Gilbert Score) Authors/developersGilbert M, and the Orthopedic Advisory Committee of WFH. Questionnaire N.B. These scores are posted with the permission of the developers.
Parole aux Jeunes
La force de la Fédération mondiale de l’hémophilie (FMH) et de ses organisations nationales membres (ONM) réside dans l’engagement que prennent des leaders inspirants qui œuvrent chaque jour afin de promouvoir la vision du traitement pour tous. Pourtant, comme bon nombre d’organisations de patients peinent à impliquer les jeunes au sein de leurs communautés, il […]
Outil d’évaluation des saignements de l’ISTH
International Society on Thrombosis and Haemostasis/Scientific and Standardization Committee Bleeding Assessment Tool (ISTH BAT) Authors/developersRodeghiero F, Tosetto A, Abshire T, Arnold DM, Coller B, James P, Neunert C, Lillicrap D on behalf of the ISTH/SSC Joint VWF and Perinatal/Pediatric Haemostasis Subcommittees Working Group Questionnaire and scoring sheet N.B.: These scores are posted with the permission […]
MCMDM-1 mW condensé
Condensed Molecular and Clinical Markers for the Diagnosis and Management of Type 1 (MCMDM-1) VWD Bleeding Questionnaire Authors/developersBowman M, Mundell G, Grabell J, Hopman WH, Rapson D, Lillicrap D, James PD Questionnaire and scoring key N.B.: These scores are posted with the permission of the developers.
Mini-rapport n° 1 issu du Sondage mondial annuel : questions sexospécifiques
Les mini rapports issus du Sondage mondial annuel de la FMH constituent des outils de plaidoyer qui offrent une analyse approfondie des données collectées. L’absence de diagnostic et de traitement chez les femmes et les jeunes filles atteintes d’un trouble de la coagulation représente toujours un écueil au sein de notre communauté. Le fait de […]
Schéma Illustré sur la Thérapie par Facteurs de Remplacement
Ce schéma illustré précise le processus normal de la coagulation sanguine, la baisse de coagulation en l’absence d’un facteur de coagulation et la façon dont la thérapie de remplacement par perfusion rétablit des valeurs de coagulation sanguine normales. Il illustre également la cascade des facteurs de coagulation et souligne les points dans la cascade où […]
Complications de l’hémophilie
This eLearning module presents Section 6 of the WFH Guidelines for the Management of Hemophilia: Complications of Hemophilia. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding the management of inhibitors, as well as musculoskeletal and infection-related complications. Instructions Click on the « View Resource » button above to […]
Traitement des hémorragies particulières
This eLearning module presents Section 5 of the WFH Guidelines for the Management of Hemophilia: Treatment of Specific Hemorrhages. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding the treatment of specific hemorrhages including into muscles, joints, soft tissues, and internal organs, as well as head trauma, […]
Agents hémostatiques
This eLearning module presents Section 4 of the WFH Guidelines for the Management of Hemophilia: Hemostatic Agents. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding FVIII and FIX clotting factor concentrates, fresh frozen plasma, cryoprecipitate, and other pharmacological options including DDAVP, tranexamic acid, and epsilon aminocaproic […]
Diagnostic en laboratoire
This eLearning module presents Section 3 of the WFH Guidelines for the Management of Hemophilia: Laboratory Diagnosis. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding the principles of diagnosis, as well as the technical aspects, equipment, and reagents involved in coagulation laboratory testing for bleeding disorders. […]
Enjeux particuliers relatifs à la prise en charge
This eLearning module presents Section 2 of the WFH Guidelines for the Management of Hemophilia: Special Management Issues. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding carriers, genetic testing and counselling, prenatal diagnosis, childbirth, vaccinations, psychosocial issues, sexuality, and ageing for people with hemophilia. Instructions Click […]
Soins généraux et prise en charge de l’hémophilie
This eLearning module presents Section 1 of the WFH Guidelines for the Management of Hemophilia: General Care and Management of Hemophilia. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life an introduction to hemophilia and the WFH recommendations regarding principles of care, comprehensive care, fitness and physical activity, adjunctive managements, prophylaxis, […]