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Psychosocial Care for People with Hemophilia

Psychosocial support is an important part of comprehensive care for people with hemophilia. The aim of this monograph is to guide parents and healthcare providers in the interventions and support that can be provided at all stages of development, from birth to adulthood.

What is von Willebrand Disease?

The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi, Polish, Bengali, Setswana This patient handbook contains basic information about the inheritance, diagnosis, symptoms, and management of von Willebrand disease (VWD).

What is Hemophilia?

The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following language, with permission from the WFH, by NMOs: Amharic, Setswana This patient handbook contains basic information about the inheritance, symptoms, and management of hemophilia.

Women and girls with hemophilia

The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Setswana, Traditional Chinese Hemophilia is a rare bleeding disorder. For many years, people believed that only men and boys could have symptoms of hemophilia. We now know […]

WFH Gene Therapy Registry – User guide for hemophilia treatment centres – Italian

The World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR) welcomes the participation of all Hemophilia Treatment Centres (HTCs) involved in gene therapy. This includes HTCs that administer gene therapy and those that manage or follow-up with patients who have received gene therapy at other centres. This user guide will orient HTCs to the WFH […]

WFH Gene Therapy Registry – User guide for hemophilia treatment centres – German

The World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR) welcomes the participation of all Hemophilia Treatment Centres (HTCs) involved in gene therapy. This includes HTCs that administer gene therapy and those that manage or follow-up with patients who have received gene therapy at other centres. This user guide will orient HTCs to the WFH […]

Report on the Annual Global Survey 2021

The Report on Annual Global Survey (AGS) includes demographic and treatment data, providing a global snapshot of people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders around the world.

What is gene therapy?

This patient handbook contains basic information about gene therapy for hemophilia. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any […]