This guide helps national hemophilia organizations plan and carry out an outreach campaign to identify people with hemophilia or other bleeding disorders who have not been diagnosed or are underserved by healthcare services.
Also Available In: Japanese A national tender system is a cost-effective system for the purchase of products or services, such as clotting factor concentrates, that facilitates the prediction of demand and use of factor products and can lead to a higher standard of care.
This edition is also available in: Japanese This edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi, Polish, Bengali, Setswana This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of von Willebrand disease.
Also Available In: Japanese A companion to Hemophilia in Pictures, this Educator’s guide provides more detailed information for advanced learning. Also includes tips for effective patient education, key talking points, and review quizzes.
Also Available In: Japanese Patient registries are crucial for monitoring trends in health, allocating resources, organizing and tracking distribution of treatment products, and improving the purchasing process on a national scale.
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Estonian, Farsi, Greek, Indonesian, Italian, Macedonian, Polish, Portuguese, Sesotho A colour-illustrated guide to hemophilia. It is the perfect educational tool for parents, nurses and other healthcare providers, and anyone seeking to transmit basic information about hemophilia and its management. […]
Having a national patient registry means being able to answer fundamental questions about the hemophilia population within a given country. This step-by-step guide outlines the basic principles of data collection, maintenance, and analysis and compares different types of registries.
Also Available In: Japanese Access to home treatment reduces the economic impact on healthcare systems and improves the quality of life for both the person with hemophilia and his family.
Also Available In: Japanese Patients receiving comprehensive hemophilia care have a lower mortality rate and a lower hospitalization rate for bleeding complications than those treated outside a hemophilia treatment centre
Also Available In: Japanese Treating people with hemophilia with safe, regulated plasma-derived factor concentrate directly reduces the social and economic impact of this bleeding disorder on the patient as well as the amount of long-term support required from family, community, and government.
Also Available In: Japanese This fact sheet demonstrates the benefits of providing basic treatment and care to people with hemophilia. Adequate care includes access to a hemophilia treatment centre and to treatment products, and education for healthcare providers, patients, and families.
The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following language, with permission from the WFH, by NMOs: Amharic, Setswana This patient handbook contains basic information about the inheritance, symptoms, and management of hemophilia.