Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | December 16 2021

Listen to this 2-hour webinar presented on December 16, 2021, to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. Glenn Pierce (WFH Vice President, Medical), Lochana Nanayakkara (WFH Dental Committee chair), Bruce Luxon (Chair, Department of Medicine), Cedric Hermans (WFH Medical Board Member), Nathalie Roussel (Associate professor) […]

Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | October 12 2021

Listen to this 2-hour webinar presented on October 12, 2021 to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. The session was moderated by Glenn Pierce (WFH Vice President, Medical). Gianluigi Pasta (WFH MSK Committee chair), Paul McLaughlin (Specialist Physiotherapist), Adolfo Llinas (Medical director), Robert Klamroth (Department […]

Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | July 27 2021

Listen to this 2-hour webinar presented on July 27, 2021 to learn about global topics related to bleeding disorders. The session was moderated by Glenn Pierce (WFH Vice President, Medical) and Cedric Hermans (WFH Medical board member). Steven Pipe (Professor of Pediatrics and Pathology), Heiner Wedemeyer (Professor), Nathan Connell (Assistant Professor of Medicine), Dawn Rotellini […]

COVID-19 Vaccines and People with Bleeding Disorders: Safety and Accessibility

Listen to this 90-minute webinar presented on June 2, 2021 to learn about the latest WFH updates on COVID-19 vaccination for people with bleeding disorders. The webinar provided an opportunity for attendees to learn about the authorization and safety of COVID-19 vaccines, with a focus on the regulators’ perspectives from the EU and the U.S.A., […]

Medical Plenary: Gene Therapy | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Steve Pipe and Luigi Naldini explore the promise of gene therapy and the broad-based multi-stakeholder preparation that is needed to deliver on this achievement. Steve Pipe explores that, although we currently stand on the threshold of this achievement, delivering on this promise will require broad-based multi-stakeholder […]

COVID-19 Treatment and Vaccination for PWBDs

Listen to this 90-minute webinar presented on March 12, 2021 to learn about the latest WFH guidance regarding COVID-19 treatment and vaccination for People with Bleeding Disorders (PWBDs). The objective of this webinar was to address questions related to COVID-19 in PWBD. It provided an opportunity for attendees to follow the latest WFH recommendations for […]

Women and girls with hemophilia | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Roseline d’Oiron, Sarah O’Brien and Andra James discuss issues on women and girls with hemophilia (WGWH), including female carriers with low levels of FVIII or FIX and/or bleeding experiences. The key points that will be covered are the importance of early diagnosis during childhood of affected […]

Advocacy During COVID-19: Voices from Europe

Listen to this 1-hour webinar that took place on 27 November 2020, chaired by Baiba Zimele (WFH lay member). Presenters Ellia Tootoonchian (WFH) and Donna Coffin (WFH) discuss the latest data of the Annual Global Survey including patient demographics, while Brian O’Mahony (Ireland), Dejan Petrovic (Serbia) and Dr. James Gauci (Malta) provide information on advocacy […]

Inhibitors – Think differently | Virtual Summit 2020

The development of inhibitory antibodies to therapeutic factor VIII (FVIII) in up to 40% of people with severe hemophilia A (HA) is the major complication in treatment/prevention of hemorrhages. The reasons some people with HA develop inhibitors while others do not, remain unclear. In this session from the WFH 2020 Virtual Summit, Sebastien Lacroix-Desmazes, Kathleen […]

Redefining prophylaxis in the modern era | Virtual Summit 2020

The currently evolving novel therapies for the management of hemophilia has ushered in a new era characterized by improved prophylaxis targets and outcomes. In this session from the WFH 2020 Virtual Summit, Johnny Mahlangu, Victor Blanchette, Robert Klamroth and Emna Gouider redefine prophylaxis in the modern era by revisiting its definition, presenting data to support […]

Virtual workshop: Creators and innovators: NMOs investing in youth

Listen to this 75-minute workshop that took place on 26th November 2020, moderated by Clive Smith (UK), WFH lay member, to explore youth engagement practices around the world, and to help participants understand the benefits of active youth involvement in national member organizations (NMO). This session features a debate contest involving Deniece Chevannes (USA), new […]