
Report on the Annual Global Survey 2025
The Report on Annual Global Survey includes demographic and treatment data, providing a global snapshot of people with hemophilia, von
Year: 2020
Language: English
Author(s): World Federation of Hemophilia
Format: Video
Patient Education is a core function of the work of any national member organization (NMO). It plays a vital role in enhancing patient care and outcomes. An educated patient is not only better able to manage their condition, but they are also better placed to support NMO efforts in advocating for improved access to care and treatment.
Listen to this 75-minute webinar that took place on 18th September 2020, chaired by Magdy El-Ekiaby, MD, Regional Advisor for the Middle East. Speakers include David Page (Canada), Brian O’Mahony (Ireland), Solange Sakr El-Hage (Lebanon) and Masood Malik (Pakistan). The objectives of this session are to underline the importance of patient education as part of the NMO’s core functions; share international and regional lessons learnt through years of designing and implementing patient education programs; and discuss the challenges faced and the strategies that can be used to cope with changing country and regional contexts.

The Report on Annual Global Survey includes demographic and treatment data, providing a global snapshot of people with hemophilia, von

Explore the science behind genetic technologies for hemophilia in this four-part video series from the WFH. Learn the basics of

This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of

This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of

This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by Silvina Graña

A summary of discussions held at the Fourteenth WFH Global Forum on Advances and Access to Safe Treatment Products for