Year: 2021
Language: English
Author(s): World Federation of Hemophilia
Listen to this 2-hour webinar presented on July 27, 2021 to learn about global topics related to bleeding disorders.
The session was moderated by Glenn Pierce (WFH Vice President, Medical) and Cedric Hermans (WFH Medical board member).
Steven Pipe (Professor of Pediatrics and Pathology), Heiner Wedemeyer (Professor), Nathan Connell (Assistant Professor of Medicine), Dawn Rotellini (WFH board member), Saliou Diop (WFH Medical board member), Ampaiwan Chuansumrit (Professor), and Emna Gouider (Head of hematology department) presented practical information on bleeding disorders, including up-to-date gene therapy information and recent developments related to von Willebrand Disease (VWD) that were presented at the ISTH Virtual Congress, as well as liver health and its relationship with hemophilia, women and girls with bleeding disorders and how to use prophylaxis in settings with limited resources.
To download a pdf of the slides of the webinar, click the icon below.
The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.
The WFH does not promote any particular pharmaceutical product and any mention of any commercial brand in this presentation is strictly for educational purposes.
The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the
This 60-minute webinar explores the theme of “Women and Girls with Bleeding Disorders and Reproductive Health: Disparities in Treatment and
The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the
This document is an introductory guide for people with hemophilia who wish to join the World Federation of Hemophilia (WFH)
This document is an introductory guide for people with hemophilia who wish to join the World Federation of Hemophilia (WFH)
The World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR) welcomes the participation of all Hemophilia Treatment Centres (HTCs) involved