Planning and Initiating Projects: A Guide for Emergent NMOs
Volunteer team members, and their beneficiaries, often have differing opinions on what projects should be of highest priority for an organization. It is essential to reach agreement on your priorities in a relatively quick and efficient manner and to coordinate the team’s energies, in order to be the most effective. This guide provides strategies for […]
Hemophilia Patient Organization Self-Assessment
A self-assessment is a useful exercise for organizations to take a closer look at what they do and how they do it. The process can help identify strengths and weaknesses and guide strategic planning. In 2011, the WFH developed this self-assessment specifically for its national member organizations (NMOs). It features a scoring system to evaluate […]
Online CFC Registry
Factor VIII Inhibitor Assay – Lab Manual Video
This step-by-step video clearly demonstrates the correct technique for the execution of the manual assay for the presence FVIII inhibitors. Supplementing the Lab Manual written protocol (Section 28), it also explains the theory behind the assay, details the important reagents, discusses the challenges posed by limited resources, and works through the plotting and interpretation of […]
One-Stage Assay of Factor VIII (FVIII) – Lab Manual Video
This step-by-step video clearly demonstrates the correct technique for the execution of the most commonly used manual technique in the diagnosis of bleeding disorders: the one-stage assay for FVIII. Supplementing the Lab Manual written protocol (Section 23), it also explains the theory behind the assay, details the important reagents, discusses the challenges posed by limited […]
APTT – Lab Manual Video
This step-by-step video clearly demonstrates the correct technique for the execution of the fundamental manual technique that constitutes the basis for the most commonly used assays in the diagnosis of bleeding disorders: the activated partial thromboplastin time (APTT). Supplementing the Lab Manual written protocol (Section 13), it also explains the theory behind the assay, details […]
General Care and Management of Hemophilia
This eLearning module presents Section 1 of the WFH Guidelines for the Management of Hemophilia: General Care and Management of Hemophilia. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life an introduction to hemophilia and the WFH recommendations regarding principles of care, comprehensive care, fitness and physical activity, adjunctive managements, prophylaxis, […]
Special Management Issues
This eLearning module presents Section 2 of the WFH Guidelines for the Management of Hemophilia: Special Management Issues. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding carriers, genetic testing and counselling, prenatal diagnosis, childbirth, vaccinations, psychosocial issues, sexuality, and ageing for people with hemophilia. Instructions Click […]
International Medical Card
The World Federation of Hemophilia International Medical Card provides critical information to others in the case of an emergency.
Report on the Annual Global Survey 2014
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Quality Data Collection
Quality data are extremely useful in advocating for better care for people with bleeding disorders. This Fact Sheet introduces the rationale for data collection, the criteria for quality data, the keys for successful quality data collection, and examples of how quality data collection can provide the foundation of effective advocacy.
Report on the Annual Global Survey 2013
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.