Nurses: Emerging hemophilia nursing skills | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit, with Kate Khair, Amber Federizo, Michelle Witkop, Regina Butler & Cathy Harrison, will cover best evidence-based practices and will also look at how the role of nurses in delivering care will change dramatically over the coming years. The WFH does not engage in the practice of medicine […]
Psychosocial: Training and career guidance for youth with bleeding disorders | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Susan Cutter, Claude Bartholomew, Annie Bole, Tony Roberts & Santosh Manivannan will explore the ways in which social workers can assist youth with bleeding disorders explore careers and develop skills that will prepare them for employment. The presentation will also address the economic disparity in countries […]
Musculoskeletal: Synovitis & synovectomy | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit with Sébastien Lobet, Eline van Bergen, Sylvia Thomas & Mauricio Silva will address the current understanding of synovitis and its treatment options, with specific emphasis on chemical and radioactive synovectomy, surgical options, rehabilitation, and non-surgical management. The WFH does not engage in the practice of medicine and […]
Multidisciplinary plenary: Quality of life | Virtual Summit 2020
This plenary from the WFH 2020 Virtual Summit seeks to explore and explain the role of pain. Deon York, Lorimer Moseley and Dr. Bajan Singh will explore the new understanding of pain, and how that understanding can change one’s perspectives of dealing with pain, as well as an overview of what sleep is, how it […]
Advocating for Better Care for People with VWD | September 1 2021
Listen to this 90-minute webinar presented on September 1, 2021 to learn about advocating for better care using the ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of von Willebrand Disease (VWD). The session was moderated by Magdy El Ekiaby, MD (WFH VWD & RBD Committee). Susie Couper (Member of the WFH […]
Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | December 16 2021
Listen to this 2-hour webinar presented on December 16, 2021, to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. Glenn Pierce (WFH Vice President, Medical), Lochana Nanayakkara (WFH Dental Committee chair), Bruce Luxon (Chair, Department of Medicine), Cedric Hermans (WFH Medical Board Member), Nathalie Roussel (Associate professor) […]
What is Prophylaxis?
The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi, Setswana This patient handbook contains basic information about prophylaxis, the regular infusion of clotting factor concentrates in order to prevent bleeding. Prophylaxis is the goal of treatment for people with severe hemophilia, allowing […]
Musculoskeletal: Hot topic debates | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit will feature three controversial topics debated by experts in their field. Hortensia De la Corte Rodriguez, Annette von Drygalski, Mauricio Silva, David Dalstrom, Janaina Bosso and David Stephensen will discuss point-of-care ultrasound (POCUS) image capture by patients, ankle arthrodesis vs. arthroplasty, and HJHS vs. functional measurement. The […]
Management of comorbidities in bleeding disorders | Virtual Summit 2020
In this session from WFH 2020 Virtual Summit, Mike Makris, Pal Andre Holme and Christine Kempton explore the incidence and management of the comorbidities of the aging people with hemophilia, with a focus on cardiovascular disease and osteoporosis. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]
Free papers: Late breaking 2 | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Saliou Diop, Ampaiwan Chuansumrit, Silvia Riva and Ahmad Tarawah discuss: “Connection between a local Registry and World Bleeding Disorders Registry: Automatic hemophilia patients’ data transfer” “Psychological status of older patients with hemophilia: results from the multicenter S+PHERA study” “Prevalence of bleeding symptoms among young adults in […]
Laboratory sciences: Replacement therapy and testing | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Steve Kitchen, Emmanuel Favaloro, Robert Gosselin and Geoffrey Kershaw discuss: How the emergence of chromogenic factor VIII testing has illuminated both discrepancies between testing methods and potential issues associated with product potency assessment How the creation of B-domain deleted recombinant factor VIII replacement product has initiated […]
Laboratory sciences: Laboratory issues and testing | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Steve Kitchen, Stefen Tiefenbacher, Anna Lowe and Annette Bowyer discuss: Gene therapy for FVIII and FIX: Will there be laboratory assay issues? Laboratory issues with isolated emicizumab therapy Laboratory issues when emicizumab and FVIII replacement are combined The WFH does not engage in the practice of […]