Recruiting and Retaining Volunteers
Describes the steps hemophilia organizations can take to attract volunteers, keep them motivated, and evaluate their volunteer program. Includes three forms that may be useful at the recruitment stage to ensure clarity of expectations between the volunteer and the organization.
Looking After the Veins
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi A description of the correct procedures for venipuncture to avoid vein damage.
Looking After the Veins – Farsi
Also Available In: English, Spanish This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or for […]
Abstracts of the XXV International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains abstracts presented at the XXV WFH Congress, Seville, Spain, 19-24 May 2002.
State of the Art XXV International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains reviews and original research reports from selected scientific sessions presented at the XXV WFH Congress, Seville, Spain, 19-24 May 2002.
Delivery of Treatment for Haemophilia: Report of a Joint WHO/WFH/ISTH Meeting
Helps identify effective treatment strategies for hemophilia. Topics include delivery of treatment, on-demand treatment, prophylaxis, immune tolerance, and factor assays.
Improving Care Beyond our Borders: A Twinning Guide for Hemophilia Treatment Centres
The Hemophilia Treatment Centre (HTC) Twinning program pairs emerging HTCs with established ones to help increase the levels of diagnosis and medical attention for people with hemophilia.
Proceedings of the WFH’s Second Global Forum on the Safety and Supply of Hemophilia Treatment Products
A summary of discussions held at the World Federation of Hemophilia’s Global Forum on the Safety and Supply of Hemophilia Treatment Products, which brings together patient groups, healthcare providers, regulators, industry representatives, and not-for-profit fractionators.
Reaching Beyond Our Borders: A Twinning Guide for Hemophilia Organizations
The Hemophilia Organization Twinning program links emerging and established hemophilia patient groups to share knowledge in areas such as patient education, outreach, fundraising, and all other aspects of operating a successful hemophilia patient society.
Conduct in Clinical Trials
Clinical trials must be designed to fulfill high scientific and ethical standards. This monograph reviews the basic principles of good clinical trial practice.
The International Haemophilia Training Centres of the World Federation of Hemophilia: A 30-Year Review
A retrospective of the World Federation of Hemophilia’s IHTC program: its aims and objectives, achievements and lessons learned, and directions for the future.
Key Issues in Hemophilia Treatment Part 2: Organizing a National Programme for Comprehensive Hemophilia Care
Addresses the considerations for establishing a national programme for comprehensive hemophilia care.