Report on the Annual Global Survey 2008
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.
Proceedings of the WFH’s Sixth Global Forum on the Safety and Supply of Treatment Products for Bleeding Disorders
A summary of discussions held at the World Federation of Hemophilia’s Global Forum on the Safety and Supply of Hemophilia Treatment Products, which brings together patient groups, healthcare providers, regulators, industry representatives, and not-for-profit fractionators.
Media Relations
Hemophilia organizations may not have the resources to hire a communications professional or fund an ambitious communications and media strategy. However, all can benefit from forming a relationship with the local and perhaps even national media.
Group Dynamics and Team Building
An overview of the theories and techniques related to group dynamics and team building. Includes a description of the stages of team development, suggestions for achieving group consensus, and instructions for facilitating two team-building activities.
Creutzfeldt-Jakob Disease
This paper reviews the epidemiology and transmission of variant Creutzfeldt-Jakob disease and the potential risk to the bleeding disorders community.
Reproductive Health in Women with Bleeding Disorders
Reviews the common obstetric and gynecological challenges in women with bleeding disorders and offers guidelines for their management.
What are Rare Clotting Factor Deficiencies? – Japanese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Traditional Chinese この患者向けハンドブックには、稀な凝固因子欠乏症の遺伝特性、診断、症状、管理についての基本情報が記載されています。
What are Inhibitors? – Japanese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese この患者向けハンドブックには、血友病の最も深刻な合併症であるインヒビターについての基本情報が記載されています。
Abstracts of the XXVIII International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains abstracts presented at the XXVIII WFH Congress, Istanbul, Turkey, 1-5 June 2008.
State of the Art XXVIII International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains reviews and original research reports from selected scientific sessions presented at the XXVIII WFH Congress, Istanbul, Turkey, 1-5 June 2008.
Manufactured Shoes and Orthopedic Shoes
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Japanese To fulfill its critical functions of protection and support, a shoe should fit properly. For people with musculoskeletal problems, certain adaptations such as heel pads, inlays, and rocker bottoms are possible and advisable.
Report on the Annual Global Survey 2007
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.