Documents and PDFs » Page 13

Hemophilia in Pictures – Vietnamese

Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for […]

Report on the Annual Global Survey 2008

Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.

Media Relations

Hemophilia organizations may not have the resources to hire a communications professional or fund an ambitious communications and media strategy. However, all can benefit from forming a relationship with the local and perhaps even national media.

Group Dynamics and Team Building

An overview of the theories and techniques related to group dynamics and team building.  Includes a description of the stages of team development, suggestions for achieving group consensus, and instructions for facilitating two team-building activities.

Creutzfeldt-Jakob Disease

This paper reviews the epidemiology and transmission of variant Creutzfeldt-Jakob disease and the potential risk to the bleeding disorders community.

What are Rare Clotting Factor Deficiencies? – Japanese

Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Traditional Chinese この患者向けハンドブックには、稀な凝固因子欠乏症の遺伝特性、診断、症状、管理についての基本情報が記載されています。

What are Inhibitors? – Japanese

Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese この患者向けハンドブックには、血友病の最も深刻な合併症であるインヒビターについての基本情報が記載されています。