What is Prophylaxis? – Farsi
The 2021 edition is available in: English, Spanish, French, Arabic, Russian, Simplified Chinese This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Setswana This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here […]
A Journey of the Heart
Social workers from around the United States and Canada were asked to write from their hearts about a patient or a mentor who has profoundly impacted their work with adults and children in the bleeding disorders community. This collection of essays aims to share these stories with the community at large as a way to […]
Proceedings of the WFH’s Eighth Global Forum on the Safety and Supply of Treatment Products for Bleeding Disorders
A summary of discussions held at the World Federation of Hemophilia’s Global Forum on the Safety and Supply of Hemophilia Treatment Products, which brings together patient groups, healthcare providers, regulators, industry representatives, and not-for-profit fractionators.
Report on the Annual Global Survey 2012
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Report on the Annual Global Survey 2011
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
How to Write and Publish a Research Paper in Haemophilia
Since hemophilia is a rare disorder, publication of a research paper relating to hemophilia is sometimes difficult to achieve in mainstream journals. This monograph focuses on publication in the journal Haemophilia, which has the specialized readership of the hemophilia community, and gives many helpful tips for first-time authors.
Guidelines for the Management of Hemophilia
The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Portuguese, Ukrainian The 2nd edition is available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission from the WFH, by NMOs: Azerbaijani, Polish, Traditional Chinese For additional resources, such […]
Fibrinolytic Inhibitors in the Management of Bleeding Disorders
A description of the mechanism of action of fibrinolytic inhibitors and their use in the treatment of inherited bleeding disorders including hemophilia A and B, von Willebrand disease, and platelet disorders.
Mild Hemophilia
A discussion of the mild forms of hemophilia A and hemophilia B, from epidemiology and molecular basis, via diagnosis, to the treatment options available.
Acquired Hemophilia
Acquired hemophilia is a rare condition caused by the production of autoantibodies, which inactivate factor VIII. This paper provides an overview of this condition that affects both men and women, its clinical features, epidemiology, laboratory diagnosis, and management.
Rehabilitation of Muscle Dysfunction in Hemophilia
This paper describes physiotherapy management following acute muscle bleeds and the assessment and treatment of muscle imbalances that may occur in hemophilia.
Desmopressin (DDAVP) in the Treatment of Bleeding Disorders
This report reviews the spectrum of indications of desmopressin in the treatment of bleeding disorders.