Comprehensive care

Nurses Committee Webinars: how to write an abstract, prepare a poster, and present using PowerPoint

Welcome to this exciting project, a collaborative effort between the Nurses Committees of the European Association for Haemophilia and Allied Disorders (EAHAD), the International Society on Thrombosis and Hemostasis (ISTH), and the World Federation of Hemophilia (WFH). We worked together to increase the active participation of the nurses in bleeding disorder care during congresses. This […]

Psychosocial Care for People with Hemophilia

Psychosocial support is an important part of comprehensive care for people with hemophilia. The aim of this monograph is to guide parents and healthcare providers in the interventions and support that can be provided at all stages of development, from birth to adulthood.

Global Policy and Access Summit 2022

The presentations and discussions of the second edition of the WFH Global Policy and Access Summit (GPAS) center around improving care and access to treatment. They include speakers and participants from local and international partner organizations, national government representatives, healthcare professionals, WFH NMO leaders, and bleeding disorders advocates. The WFH does not engage in the […]

Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | December 15 2022

Listen to this 2-hour webinar presented on December 15, 2022, to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. Patricia Cabré (Spain), Adolfo Llinas (Colombia), Luigi Solimeno (Italy), Radoslaw Kaczmarek (U.S.A.), Catherine Hayward (Canada), and Andra James (U.S.A.) presented practical information on bleeding disorders, including resilience and […]

Multidisciplinary track | WFH World Congress 2022

In these sessions from the WFH 2022 World Congress, listen to Kate Khair, Luke Pembroke, Louis Marlow, Andrew Selvaggi, Robert Cooper, Simon Fletcher, Sarah O’Brien, Ming Lim, Brittany Lee-Acton, Carrie Arnold, Rick Waines, Zander Masser, Brian O’Mahony, Barbara Konkle, Adolfo Llinas, Tyler Buckner, Nathalie Roussel, Valérie-Anne Chantrain and Bojan Pirnat address current multidiscilinary topics in […]

Nurses track | WFH World Congress 2022

In these sessions from the WFH 2022 World Congress, listen to Lori Laudenbach, Cathy Harrison, Sharon Varney, Sandra Dodgson, Jennifer Meldau, Marcela Ganzella, Anjalin D’Souza, Jemma Efford, BJ Ramsay, Sarah Johns, Jan Kuhn, Greta Mulders, Khalid Al Habaybia, Khaled Al Qawasmeh, April Jones, Kim Schafer, Luke Pembroke, Marlene Beijlevelt, Lauren Nyhan, Nathan Connell, Carien Manuels, […]

Psychosocial track | WFH World Congress 2022

Reducing anxiety and stress for people impacted by a bleeding disorder In this session from the WFH 2022 World Congress, Susan Cutter (United States), Patricia Cabré (Spain) and Sarah Whitaker (United Kingdom), will discuss the impact of anxiety and stress on parents and caregivers, couples, young adults, and people with inherited bleeding disorders, as well […]

Dental track | WFH World Congress 2022

In these sessions from the WFH 2022 World Congress, listen to Lochana Nanayakkara, Norjehan Yahaya, Irakli Chachua, Zikra Alkhayal, Laura Olan, Branislav Bajkin, Norjehan Yahaya, Alison Dougall, Tom Cavell, Laura Olan, Danielle Nance, Graeme Ting, Dan Hart, Aisyah Ahmad Fisal, Elvira Correa, Rebecca Schaffer, Zikra Alkhayak, Miryam Parreira, Patricio Gatti, and Luigi Nibali address current […]

Laboratory sciences track | WFH World Congress 2022

In these sessions from the WFH 2022 World Congress, listen to Pierre Toulon, Silmara Montalvao, Steve Kitchen, Sukesh Nair,Yesim Dargaud, Marie-Christine Alessi, Annette Bowyer, Veronica Flood, Emmanuel Favaloro and Connie Miller address current topics in laboratory sciences. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for […]

Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | October 13 2022

Listen to this 2-hour webinar presented on October 13, 2022, to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. Susan Cutter (U.S.A.), Cesar Haddad (Lebanon), Marlène Beijevelt (The Netherlands), Miguel Escobar (U.S.A.), Sukesh Nair (India) and Annette von Drygalski (U.S.A.) presented practical information on bleeding disorders, including […]

Musculoskeletal track | WFH World Congress 2022

In these sessions from the WFH 2022 World Congress, listen to Adolfo Llinas, Cindy Bailey, Janaina Bosso, David Stephensen, Peter Aguero, Mark Krimmel, Mauricio Silva, Luigi Solimeno, Gianluigi Pasta, Alok Srivastava, Piet de Kleijn, Nicholas Goddard, David Stephensen, Pamela Narayan, Greig Blamey, Horacio Caviglia, Carla Daffunchio, Antonio Gavrilovski, Ryan Mahaffey, Rohini Dange, Cesar Haddad and […]