Year: 2022
Language: English
Author(s): World Federation of Hemophilia
Listen to this 2-hour webinar presented on October 13, 2022, to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia.
Susan Cutter (U.S.A.), Cesar Haddad (Lebanon), Marlène Beijevelt (The Netherlands), Miguel Escobar (U.S.A.), Sukesh Nair (India) and Annette von Drygalski (U.S.A.) presented practical information on bleeding disorders, including self-advocacy, treatment adherence, recommendations for playing sports, and the transition process to adulthood in adolescents with bleeding disorders. Other topics will include information on hemophilia B (factor IX deficiency), assays and reagents, and what is considered a bleed (or not) in the era of prophylaxis and new treatments.
The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.
The WFH does not promote any particular pharmaceutical product and any mention of any commercial brand in this presentation is strictly for educational purposes.
Psychosocial support is an important part of comprehensive care for people with hemophilia. The aim of this monograph is to
The presentations and discussions of the second edition of the WFH Global Policy and Access Summit (GPAS) center around improving
Listen to this 2-hour webinar presented on December 15, 2022, to learn about global topics related to bleeding disorders, with
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Reducing anxiety and stress for people impacted by a bleeding disorder In this session from the WFH 2022 World Congress,
