Overcoming Challenges in Hemophilia Care
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psychosocial Committee: Kathaleen Schnur and Alice Oliver The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]
Psychosocial Support for Families at the Child’s Diagnosis Stage
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psychosocial Committee: Patricia Cabré and Silvina Graña The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]
Space to Talk, Room to Listen
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of the WFH Psycosocial Committee: Sarah Whitaker and Jane Portnoy The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]
Nurses Committee Webinars: How to write an abstract, prepare a poster, present using powerpoint, do a literature search in databases and read/critique an article
Welcome to this exciting project, a collaborative effort between the Nurses Committees of the European Association for Haemophilia and Allied Disorders (EAHAD), the International Society on Thrombosis and Hemostasis (ISTH), and the World Federation of Hemophilia (WFH). We worked together to increase the active participation of the nurses in bleeding disorder care during congresses. This […]
Nurses Committee Webinars: How to start a Journal Club: A Cinderella Story
Welcome to this exciting webinar, a collaborative effort between the Nurses Committees of the European Association for Haemophilia and Allied Disorders (EAHAD), and the World Federation of Hemophilia (WFH). We worked together to increase the active participation of the nurses in bleeding disorder care. How to Start a Journal Club: A Cinderella Story Join Cathy […]
Psychosocial Care for People with Hemophilia
Psychosocial support is an important part of comprehensive care for people with hemophilia. The aim of this monograph is to guide parents and healthcare providers in the interventions and support that can be provided at all stages of development, from birth to adulthood.
Global Policy and Access Summit 2022
The presentations and discussions of the second edition of the WFH Global Policy and Access Summit (GPAS) center around improving care and access to treatment. They include speakers and participants from local and international partner organizations, national government representatives, healthcare professionals, WFH NMO leaders, and bleeding disorders advocates. The WFH does not engage in the […]
Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | December 15 2022
Listen to this 2-hour webinar presented on December 15, 2022, to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. Patricia Cabré (Spain), Adolfo Llinas (Colombia), Luigi Solimeno (Italy), Radoslaw Kaczmarek (U.S.A.), Catherine Hayward (Canada), and Andra James (U.S.A.) presented practical information on bleeding disorders, including resilience and […]
Multidisciplinary track | WFH World Congress 2022
In these sessions from the WFH 2022 World Congress, listen to Kate Khair, Luke Pembroke, Louis Marlow, Andrew Selvaggi, Robert Cooper, Simon Fletcher, Sarah O’Brien, Ming Lim, Brittany Lee-Acton, Carrie Arnold, Rick Waines, Zander Masser, Brian O’Mahony, Barbara Konkle, Adolfo Llinas, Tyler Buckner, Nathalie Roussel, Valérie-Anne Chantrain and Bojan Pirnat address current multidiscilinary topics in […]
Nurses track | WFH World Congress 2022
In these sessions from the WFH 2022 World Congress, listen to Lori Laudenbach, Cathy Harrison, Sharon Varney, Sandra Dodgson, Jennifer Meldau, Marcela Ganzella, Anjalin D’Souza, Jemma Efford, BJ Ramsay, Sarah Johns, Jan Kuhn, Greta Mulders, Khalid Al Habaybia, Khaled Al Qawasmeh, April Jones, Kim Schafer, Luke Pembroke, Marlene Beijlevelt, Lauren Nyhan, Nathan Connell, Carien Manuels, […]
Psychosocial track | WFH World Congress 2022
Reducing anxiety and stress for people impacted by a bleeding disorder In this session from the WFH 2022 World Congress, Susan Cutter (United States), Patricia Cabré (Spain) and Sarah Whitaker (United Kingdom), will discuss the impact of anxiety and stress on parents and caregivers, couples, young adults, and people with inherited bleeding disorders, as well […]
Dental track | WFH World Congress 2022
In these sessions from the WFH 2022 World Congress, listen to Lochana Nanayakkara, Norjehan Yahaya, Irakli Chachua, Zikra Alkhayal, Laura Olan, Branislav Bajkin, Norjehan Yahaya, Alison Dougall, Tom Cavell, Laura Olan, Danielle Nance, Graeme Ting, Dan Hart, Aisyah Ahmad Fisal, Elvira Correa, Rebecca Schaffer, Zikra Alkhayak, Miryam Parreira, Patricio Gatti, and Luigi Nibali address current […]