Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | July 27 2021
Listen to this 2-hour webinar presented on July 27, 2021 to learn about global topics related to bleeding disorders. The session was moderated by Glenn Pierce (WFH Vice President, Medical) and Cedric Hermans (WFH Medical board member). Steven Pipe (Professor of Pediatrics and Pathology), Heiner Wedemeyer (Professor), Nathan Connell (Assistant Professor of Medicine), Dawn Rotellini […]
Frequently Asked Questions on Women and Girls with Bleeding Disorders
This resource has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: German Many women and girls also experience symptoms of Hemophilia. Some women live with their symptoms for years without being diagnosed or even suspecting they have a bleeding disorder. This fact sheet includes answers to questions such […]
Carriers and Women with Hemophilia – Traditional Chinese
The 2023 edition is available in: English, Spanish, French This edition is also available in: Arabic, Russian, Simplified Chinese, Japanese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Setswana This is not an official WFH translation. This resource has been translated with permission […]
Ask Me Anything: Discussing heavy periods with my partner?
Pour activer le sous-titrage en français, cliquez d’abord sur l’icône CC et ensuite sur l’icône des paramètres pour sélectionner le langage. Para activar los subtítulos en español, primero haga clic en el ícono CC y luego haga clic en el ícono de configuración para seleccionar el idioma. These videos discuss intimate relationships in clear language. […]
Ask Me Anything: Minimizing menstrual bleeding during sex?
Pour activer le sous-titrage en français, cliquez d’abord sur l’icône CC et ensuite sur l’icône des paramètres pour sélectionner le langage. Para activar los subtítulos en español, primero haga clic en el ícono CC y luego haga clic en el ícono de configuración para seleccionar el idioma. These videos discuss intimate relationships in clear language. […]
Carriers and Women with Hemophilia – Setswana
The 2023 edition is available in: English, Spanish, French This edition is also available in: Arabic, Russian, Simplified Chinese, Japanese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Traditional Chinese This is not an official WFH translation. This resource has been translated with permission […]
Women and girls with hemophilia | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Roseline d’Oiron, Sarah O’Brien and Andra James discuss issues on women and girls with hemophilia (WGWH), including female carriers with low levels of FVIII or FIX and/or bleeding experiences. The key points that will be covered are the importance of early diagnosis during childhood of affected […]
Recommendations for management of pregnancy and delivery in women with inherited bleeding disorders
In the Sunday morning session entitled Women and Bleeding Disorders, Sue Pavord talks about the UK Guidelines for the management of inherited bleeding disorders in pregnancy and gives an overview of the recommendations included for hemophilia, von Willebrand Disease, rare factor deficiencies, and platelet function disorders.
Women and Girls with Bleeding Disorders
In the Tuesday morning session entitled Women With Bleeding Disorders: Clinical and Psychological Issues, Claire McLintock discussed the effect misinformation and taboos around menstruation can have on the life of women with bleeding disorders.
Congenital Fibrinogen Disorders: Clinical features and management
In the Wednesday morning session on rare and ultra-rare bleeding disorders, Philippe de Moerloose disscusses the issues of congenital fibrinogen disorders.
Excessive Bleeding in Women: Spotlight on hemophilia carriers
In the Tuesday morning multidisciplinary plenary, Michelle Sholzberg explains the particular issues of excessive bleeding in women.
Management of Women with VWD
In the Sunday afternoon joint Laboratory Sciences and VWD Professional Development Workshop, Andra H. James explains the unique issues in the management of women with von Willebrand Disease (VWD). This talk was part of the joint Laboratory Sciences and VWD Professional Development Workshop. See below for the other talks in this workshop: