Women and girls with bleeding disorders

3rd WFH Global Summit on Women and Girls with Bleeding Disorders (WGBD)

The chosen theme for this edition of the global summit centered on Equity and Access to Care for women and girls with bleeding disorders. Healthcare providers, people living with bleeding disorders, family members, national member organization leaders, and other stakeholders came together to discuss several topics including, the importance of data and the use of […]

Women and Girls with Bleeding Disorders and Reproductive Health: Disparities in treatment and care | March 8, 2023

This 60-minute webinar explores the theme of “Women and Girls with Bleeding Disorders and Reproductive Health: Disparities in Treatment and Care” and covers topics like fertility challenges faced by WGBD, overlooked issues that have significant health impact for WGBDs and management of WGBDs in a multidisciplinary setting. Speakers included Dawn Rotellini (U.S.A), Maureen Baldwin, MD […]

Women and girls with hemophilia

The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Setswana, Traditional Chinese Hemophilia is a rare bleeding disorder. For many years, people believed that only men and boys could have symptoms of hemophilia. We now know […]

Women and girls with bleeding disorders | WFH World Congress 2022

In these sessions from the WFH 2022 World Congress, listen to Roseline d’Oiron, Angela Weyand, Robert Sidonio, Michelle Sholzberg, Baiba Ziemele, Dawn Rotellini, Paula James, Rezan Abdul-Kadir, Claire McLintock, Nathalie Roussel, Lena Volland, Silvina Grana, Nikole Scappe, Megan Adediran, Colleen Vallad-Hix, Silvana Moran, Miguel Escobar, Marlene Beijlevelt, Rajiv K. Pruthi and Dan Hart address current […]

International Women’s Day webinar | March 8 2022

Listen to this 90-minute webinar presented on March 8, 2022, to learn about women and girls with bleeding disorders. The webinar is a joint collaboration between the WFH Women and Girls with Bleeding Disorders (WGBD) committee and the WFH von Willebrand Disease (VWD) and Rare Bleeding Disorders (RBD) committee. Speakers will include Dawn Rotellini (U.S.A), […]

Multidisciplinary plenary: Women ageing gracefully | Virtual Summit 2020

In this plenary from the WFH 2020 Virtual Summit, Kate Khair, Michelle Lavin, Rezan Abdul-Kadir & Jameela Sathar will address women’s long-term health issues and improve screening, as well as answer any questions from the virtual audience. This plenary has a special emphasis on women and those who care for them, and aims to identify […]

Frequently Asked Questions on Women and Girls with Bleeding Disorders – German

This document is also available in: English, French, Spanish This is not an official WFH translation. This resource has been translated with permission, and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or for any errors or […]

WFH Highlight: Impact challenges of bleeding disorders in women and girls | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Rezan Abdul-Kadir, Roshni Kulkarni, Michelle Lavin, Robert Sidonio and Tahira Zafar highlight the challenges women and girls experience in getting proper diagnosis, care, and treatment for their bleeding disorder. The speakers will address key issues such as reproductive challenges, diagnostic dilemmas, and treatment options for heavy […]

Free papers: VWD and Women’s issues | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Andra James, Mandy Yap, Mario von Depka Prondzinski, Lubna Zafar, Robert Sidonio and Roseline d’Oiron discuss: “The clinical usefulness of elongated platelet function analysis in characterizing Bleeding of Unknown Cause (BUC)” “Angiogenic alterations in VWD as a possible cause of epistaxis” “The menace of menorrhagia in […]

Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | July 27 2021

Listen to this 2-hour webinar presented on July 27, 2021 to learn about global topics related to bleeding disorders. The session was moderated by Glenn Pierce (WFH Vice President, Medical) and Cedric Hermans (WFH Medical board member). Steven Pipe (Professor of Pediatrics and Pathology), Heiner Wedemeyer (Professor), Nathan Connell (Assistant Professor of Medicine), Dawn Rotellini […]