Barriers to Accessing Care for Women and Girls with Bleeding Disorders | September 22 2022
Listen to this 90-minute webinar presented on September 22, 2022, to learn about how to address challenges faced by Women and Girls with Bleeding Disorders in accessing care and treatment and potential solutions. Issues like late diagnosis, lack of data, cultural taboos, and sexism has been discussed as part of the program and a diverse […]
Women and girls with bleeding disorders | WFH World Congress 2022
In these sessions from the WFH 2022 World Congress, listen to Roseline d’Oiron, Angela Weyand, Robert Sidonio, Michelle Sholzberg, Baiba Ziemele, Dawn Rotellini, Paula James, Rezan Abdul-Kadir, Claire McLintock, Nathalie Roussel, Lena Volland, Silvina Grana, Nikole Scappe, Megan Adediran, Colleen Vallad-Hix, Silvana Moran, Miguel Escobar, Marlene Beijlevelt, Rajiv K. Pruthi and Dan Hart address current […]
International Women’s Day webinar | March 8 2022
Listen to this 90-minute webinar presented on March 8, 2022, to learn about women and girls with bleeding disorders. The webinar is a joint collaboration between the WFH Women and Girls with Bleeding Disorders (WGBD) committee and the WFH von Willebrand Disease (VWD) and Rare Bleeding Disorders (RBD) committee. Speakers will include Dawn Rotellini (U.S.A), […]
Multidisciplinary plenary: Women ageing gracefully | Virtual Summit 2020
In this plenary from the WFH 2020 Virtual Summit, Kate Khair, Michelle Lavin, Rezan Abdul-Kadir & Jameela Sathar will address women’s long-term health issues and improve screening, as well as answer any questions from the virtual audience. This plenary has a special emphasis on women and those who care for them, and aims to identify […]
Frequently Asked Questions on Women and Girls with Bleeding Disorders – German
This document is also available in: English, French, Spanish This is not an official WFH translation. This resource has been translated with permission, and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or for any errors or […]
Genetic Counseling and Psychosocial Support for Carriers | Workshop for Psychosocial Professionals
This module was presented by Silvina Graña at the Virtual Workshop for Psychosocial Professionals in Central and South America on April 9, 2021. To view other modules from this series, please click here. This WFH workshop was originally presented in Spanish. The WFH does not engage in the practice of medicine and under no circumstances […]
WFH Highlight: Impact challenges of bleeding disorders in women and girls | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Rezan Abdul-Kadir, Roshni Kulkarni, Michelle Lavin, Robert Sidonio and Tahira Zafar highlight the challenges women and girls experience in getting proper diagnosis, care, and treatment for their bleeding disorder. The speakers will address key issues such as reproductive challenges, diagnostic dilemmas, and treatment options for heavy […]
Free papers: VWD and Women’s issues | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Andra James, Mandy Yap, Mario von Depka Prondzinski, Lubna Zafar, Robert Sidonio and Roseline d’Oiron discuss: “The clinical usefulness of elongated platelet function analysis in characterizing Bleeding of Unknown Cause (BUC)” “Angiogenic alterations in VWD as a possible cause of epistaxis” “The menace of menorrhagia in […]
Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | July 27 2021
Listen to this 2-hour webinar presented on July 27, 2021 to learn about global topics related to bleeding disorders. The session was moderated by Glenn Pierce (WFH Vice President, Medical) and Cedric Hermans (WFH Medical board member). Steven Pipe (Professor of Pediatrics and Pathology), Heiner Wedemeyer (Professor), Nathan Connell (Assistant Professor of Medicine), Dawn Rotellini […]
Frequently Asked Questions on Women and Girls with Bleeding Disorders
This resource has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: German Many carriers of hemophilia also experience symptoms of the disorder. Some women live with their symptoms for years without being diagnosed or even suspecting they have a bleeding disorder. This fact sheet includes answers to questions […]
Carriers and Women with Hemophilia – Traditional Chinese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese, Japanese This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Setswana This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with […]
Ask Me Anything: Discussing heavy periods with my partner?
Pour activer le sous-titrage en français, cliquez d’abord sur l’icône CC et ensuite sur l’icône des paramètres pour sélectionner le langage. Para activar los subtítulos en español, primero haga clic en el ícono CC y luego haga clic en el ícono de configuración para seleccionar el idioma. These videos discuss intimate relationships in clear language. […]