International Women’s Day webinar | March 8 2022
Listen to this 90-minute webinar presented on March 8, 2022, to learn about women and girls with bleeding disorders. The webinar is a joint collaboration between the WFH Women and Girls with Bleeding Disorders (WGBD) committee and the WFH von Willebrand Disease (VWD) and Rare Bleeding Disorders (RBD) committee. Speakers will include Dawn Rotellini (U.S.A), […]
Multidisciplinary plenary: Women ageing gracefully | Virtual Summit 2020
In this plenary from the WFH 2020 Virtual Summit, Kate Khair, Michelle Lavin, Rezan Abdul-Kadir & Jameela Sathar will address women’s long-term health issues and improve screening, as well as answer any questions from the virtual audience. This plenary has a special emphasis on women and those who care for them, and aims to identify […]
Frequently Asked Questions on Women and Girls with Bleeding Disorders – German
This document is also available in: English, French, Spanish This is not an official WFH translation. This resource has been translated with permission, and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or for any errors or […]
Genetic Counseling and Psychosocial Support for Carriers | Workshop for Psychosocial Professionals
This module was presented by Silvina Graña at the Virtual Workshop for Psychosocial Professionals in Central and South America on April 9, 2021. To view other modules from this series, please click here. This WFH workshop was originally presented in Spanish. The WFH does not engage in the practice of medicine and under no circumstances […]
Asesoramiento Genético y Apoyo Psicosocial a Portadoras | Taller para Profesionales Psicosociales
Este módulo fue presentado por Silvina Graña en el Taller Virtual para Profesionales Psicosociales en Centro y Sudamérica el 9 de abril de 2021. Para ver otros módulos de esta serie, haga clic aquí. La FMH no se compromete en la práctica de la medicina y en ningún caso recomienda un tratamiento particular para individuos […]
WFH Highlight: Impact challenges of bleeding disorders in women and girls | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Rezan Abdul-Kadir, Roshni Kulkarni, Michelle Lavin, Robert Sidonio and Tahira Zafar highlight the challenges women and girls experience in getting proper diagnosis, care, and treatment for their bleeding disorder. The speakers will address key issues such as reproductive challenges, diagnostic dilemmas, and treatment options for heavy […]
Free papers: VWD and Women’s issues | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Andra James, Mandy Yap, Mario von Depka Prondzinski, Lubna Zafar, Robert Sidonio and Roseline d’Oiron discuss: “The clinical usefulness of elongated platelet function analysis in characterizing Bleeding of Unknown Cause (BUC)” “Angiogenic alterations in VWD as a possible cause of epistaxis” “The menace of menorrhagia in […]
Preguntas Frecuentes Sobre Mujeres y Niñas con Trastornos de la Coagulación
This resource has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: German Muchas portadoras de hemofilia también experimentan síntomas del trastorno. Algunas mujeres viven con sus síntomas durante años sin recibir diagnóstico o siquiera sospechar que padecen un trastorno de la coagulación. Esta hoja informativa incluye respuestas a […]
Foire aux questions sur les femmes et les filles atteintes de troubles de la coagulation
This resource has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: German De nombreuses porteuses ressentent également des symptômes de l’hémophilie. Certaines femmes éprouvent des symptômes pendant des années sans être diagnostiquées, ni même soupçonner qu’elles ont un trouble de coagulation. Cette fiche d’information comprend des réponses à […]
Frequently Asked Questions on Women and Girls with Bleeding Disorders
This resource has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: German Many carriers of hemophilia also experience symptoms of the disorder. Some women live with their symptoms for years without being diagnosed or even suspecting they have a bleeding disorder. This fact sheet includes answers to questions […]