International Women’s Day Webinar | March 7, 2025
Listen to this 90-minute webinar presented on March 7, 2025, to learn about women and girls with bleeding disorders (WGBD). This year, participants will have the opportunity to learn about bleeding assessment tools (BATs), including health-related quality of life assessments for WGBD. Participants will also learn about how WGBDs can advocate for better care. Speakers […]
von Willebrand Disease and reproductive tract bleeding, pregnancy, and postpartum bleeding | March 8, 2024
In celebration of International Women’s Day, the WFH hosted an educational webinar. The event centered around reproductive tract bleeding, pregnancy, and postpartum bleeding in women with von Willebrand Disease (VWD). Attendees had the opportunity to learn from and pose questions to key experts in the field, as well as to gain insights into the experiences […]
3rd WFH Global Summit on Women and Girls with Bleeding Disorders (WGBD)
The chosen theme for this edition of the global summit centered on Equity and Access to Care for women and girls with bleeding disorders. Healthcare providers, people living with bleeding disorders, family members, national member organization leaders, and other stakeholders came together to discuss several topics including, the importance of data and the use of […]
Women and Girls with Bleeding Disorders and Reproductive Health: Disparities in treatment and care | March 8, 2023
This 60-minute webinar explores the theme of “Women and Girls with Bleeding Disorders and Reproductive Health: Disparities in Treatment and Care” and covers topics like fertility challenges faced by WGBD, overlooked issues that have significant health impact for WGBDs and management of WGBDs in a multidisciplinary setting. Speakers included Dawn Rotellini (U.S.A), Maureen Baldwin, MD […]
Women and girls with hemophilia
The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Setswana, Traditional Chinese Hemophilia is a rare bleeding disorder. For many years, people believed that only men and boys could have symptoms of hemophilia. We now know […]
Barriers to Accessing Care for Women and Girls with Bleeding Disorders | September 22 2022
Listen to this 90-minute webinar presented on September 22, 2022, to learn about how to address challenges faced by Women and Girls with Bleeding Disorders in accessing care and treatment and potential solutions. Issues like late diagnosis, lack of data, cultural taboos, and sexism has been discussed as part of the program and a diverse […]
Women and girls with bleeding disorders | WFH World Congress 2022
In these sessions from the WFH 2022 World Congress, listen to Roseline d’Oiron, Angela Weyand, Robert Sidonio, Michelle Sholzberg, Baiba Ziemele, Dawn Rotellini, Paula James, Rezan Abdul-Kadir, Claire McLintock, Nathalie Roussel, Lena Volland, Silvina Grana, Nikole Scappe, Megan Adediran, Colleen Vallad-Hix, Silvana Moran, Miguel Escobar, Marlene Beijlevelt, Rajiv K. Pruthi and Dan Hart address current […]
International Women’s Day webinar | March 8 2022
Listen to this 90-minute webinar presented on March 8, 2022, to learn about women and girls with bleeding disorders. The webinar is a joint collaboration between the WFH Women and Girls with Bleeding Disorders (WGBD) committee and the WFH von Willebrand Disease (VWD) and Rare Bleeding Disorders (RBD) committee. Speakers will include Dawn Rotellini (U.S.A), […]
Multidisciplinary plenary: Women ageing gracefully | Virtual Summit 2020
In this plenary from the WFH 2020 Virtual Summit, Kate Khair, Michelle Lavin, Rezan Abdul-Kadir & Jameela Sathar will address women’s long-term health issues and improve screening, as well as answer any questions from the virtual audience. This plenary has a special emphasis on women and those who care for them, and aims to identify […]
Frequently Asked Questions on Women and Girls with Bleeding Disorders – German
This document is also available in: English, French, Spanish This is not an official WFH translation. This resource has been translated with permission, and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or for any errors or […]
Genetic Counseling and Psychosocial Support for Carriers | Workshop for Psychosocial Professionals
This module was presented by Silvina Graña at the Virtual Workshop for Psychosocial Professionals in Central and South America on April 9, 2021. To view other modules from this series, please click here. This WFH workshop was originally presented in Spanish. The WFH does not engage in the practice of medicine and under no circumstances […]
WFH Highlight: Impact challenges of bleeding disorders in women and girls | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Rezan Abdul-Kadir, Roshni Kulkarni, Michelle Lavin, Robert Sidonio and Tahira Zafar highlight the challenges women and girls experience in getting proper diagnosis, care, and treatment for their bleeding disorder. The speakers will address key issues such as reproductive challenges, diagnostic dilemmas, and treatment options for heavy […]